Perinatal Hospice & Palliative Care Programs and Support
As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, more than 350 pioneering hospitals, hospices, and community-based organizations in the U.S. and around the world are now providing perinatal hospice & palliative care support for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
A perinatal hospice approach walks with these families on their journey through pregnancy, birth, and death, honoring the baby as well as the baby's family. Perinatal hospice is not a place; it is an extraordinary way of caring for the pregnant mother, the baby, the father, and all involved with dignity and compassion and love. It can easily be incorporated into standard pregnancy and birth care just about anywhere.
Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of palliative care (see A Gift of Time and the many resources for parents and caregivers on this site). Countless parents have been quietly helped in this way, and many of their experiences also have paved the way for more formal support.
Programs and groups listed below may vary in their scope of support and services. Most of the programs listed below are based in hospitals and are integrated into pregnancy and birth care; some are hospice-based; and a few are faith-based or independent. This list, begun in 2006, is compiled free of charge and is not necessarily exhaustive; if you need this support and your hospital is not listed, your hospital might already be providing this care or be willing to learn with you. If your organization provides formal or informal perinatal hospice & palliative care support and you would like to be added to this list, please contact the editor of this site.
United States
ALABAMA
Perinatal Hospice and Palliative Care at Hospice Family Care, in affiliation with Huntsville Hospital. Huntsville, Alabama
ALASKA
Fairbanks Memorial Hospital perinatal bereavement program. Contact: (907) 458-3014. Fairbanks, Alaska
Hospice of Anchorage, providing support to parents before and after birth as well as coordination with medical providers. Contact: Bereavement services coordinator Lisa Fleischer, (907) 561-5322. Anchorage, Alaska
Providence Medical Group perinatal palliative care. Contact: Kelsey Terland MD, (907) 212-7997. Anchorage, Alaska
ARIZONA
Babies Remembered perinatal palliative care and baby loss family support, a community-based organization offering support for families in the Tucson area as well as long distance. Contact: President and co-founder Sherokee Ilse, (952) 201-8667 or visit the list of independent advisors and doulas in other states. Tucson, Arizona
Dignity Health Chandler Regional and Mercy Gilbert Medical Center Heaven's Hummingbirds perinatal bereavement support, including prenatal support. Contact: Perinatal bereavement coordinator Lori Remley, (480) 728-7423. Gilbert, Arizona
Hospice of the Valley Pediatric Care, including perinatal hospice. Phoenix, Arizona
MB&Sphere virtual and in-person doula services, specializing in pregnancy with complex diagnosis, perinatal hospice and bereavement. Contact: Berdette Carrasco RN, (623) 330-4963.
Northern Arizona Healthcare Perinatal LOSS Palliative Care Program at Flagstaff Medical Center & Verde Valley Medical Center. Contact: Perinatal Educator Lynn Harris RN BSN, (928) 214-3997. Flagstaff, Arizona
Phoenix Children's Perinatal Palliative Care. Phoenix, Arizona
ARKANSAS
Arkansas Fetal Diagnosis and Management, a collaborative program of the University of Arkansas for Medical Sciences and Arkansas Children's Hospital. Contact: Shannon Barringer (501) 296-1745 ext. 1415 or Sara Peeples MD, (501) 526-3570. Little Rock, Arkansas
Circle of Life Hospice Perinatal Transitions in Care Program. Springdale and Bentonville, Arkansas
St. Vincent Health System Journey perinatal bereavement program, including perinatal hospice support. Little Rock, Arkansas
CALIFORNIA
Angel Babies/Bebitos Angelitos of Hinds Hospice. Perinatal palliative care and grief support. Contact: (559) 248-8579. Fresno and Merced, California
Community Hospice pediatric hospice, including perinatal support. Modesto, California
Elizabeth Hospice Perinatal Program, including grief counseling and support. Contact: Pediatric Department at (833) 349.2056, Escondido, California
George Mark Children's House, including perinatal palliative care consults. San Leandro, California
Hospice of Santa Cruz County perinatal palliative care. Contact: Patient care manager Monica Newitt RN BSN CHPN, (831) 430-3000. Scotts Valley and Watsonville, California
Loma Linda University Children’s Hospital Maternal Fetal Medicine Clinic, including perinatal palliative care. Contact: Perinatal palliative care coordinator Katherine Wall RN BSN MEd. Loma Linda, California
Miller Children's and Women's Hospital Perinatal Connections Program. Contact: Meg Goris APRN MSN(R) FNP-BC ACHPN. Long Beach, California
Providence Medical Group Fortuna - Obstetrics and Gynecology, including perinatal palliative care. Fortuna, California
Providence Mission Hospital Mission Viejo Maternity Services, including perinatal palliative care. Mission Viejo, California
Providence Redwood Memorial Hospital Holistic Healing Program, including perinatal palliative care. Fortuna, California
Providence St. Joseph Health Hospice-Anaheim Perinatal Comfort Care Program. Anaheim, California
Providence St. Joseph Hospital Eureka Palliative Care, including perinatal palliative care. Eureka, California
Providence St. Joseph Hospital Orange Mother-Baby Unit, including perinatal palliative care. Orange, California
Providence TrinityKids Care, including perinatal palliative care. Torrance, California
Rady Children's Hospital Perinatal Hospice Care. Contact: Krishelle Marc-Aurele MD, board-certified in neonatology and hospice & palliative medicine, (619) 543-3759. San Diego, California
Scripps Health Perinatal Hospice Care, with hospital locations in La Jolla, Chula Vista, Encinitas, and San Diego, California
University of California Davis Children's Hospital Fetal Care and Treatment Center Supportive Therapies and Enhanced Palliative Services (STEPS) program, including perinatal palliative care. Contact: (916) 734-8950. Sacramento, California
University of California Irvine Health Paloma Comfort Care. Orange, California
University of California San Francisco Benioff Children's Hospital. Contact: Palliative care nurse practitioner Maggie Root PNP or perinatal palliative care coordinator and grief/loss counselor Summer Segal MS LCGC, (415) 353-1328. San Francisco, California
University of Southern California Keck School of Medicine Institute for Maternal Fetal Health perinatal hospice & palliative care. Los Angeles, California
COLORADO
Bella Natural Women's Care & Family Wellness, an OB/GYN and family clinic that also provides perinatal hospice support. Englewood, Colorado
Hospice del Valle, including prenatal support. Contact: Social worker and bereavement counselor Mary Jane Cisneros, (719) 589-9019. Alamosa, Colorado
Leaves in Time, available for in-person perinatal hospice support in the Four Corners area (southwest Colorado, New Mexico, Arizona and Utah) as well as virtually. Contact: Liz Moran CNM, (970) 316-2271. Pagosa Springs, Colorado
String of Pearls, experienced OB nurses providing in-person perinatal hospice support in the Denver area and long-distance support to families nationwide. Contact: Executive director Laura Huene BSN RN CPLC. Littleton, Colorado
CONNECTICUT
Regional Hospice and Home Care of Western Connecticut Perinatal Hospice Program. Contact: Coordinator Christine Mastropietro RN, (203) 702-7400. Danbury, Connecticut
Yale New Haven Hospital Perinatal Palliative Care. Contact: (855) 433-8252. New Haven, Connecticut
DELAWARE
Delaware Hospice Katybug Pediatric Program, including support before and after birth. Contact: Director of admissions Erica Galbreath, (302) 478-5707. Serving families throughout Delaware and southeastern Pennsylvania.
IMPACT (Infant, Maternal, Pediatric Advanced Care Team) perinatal palliative care, Christiana Care Health Systems. Contact: Office of Neonatology, (302) 733-2410. Newark, Delaware
DISTRICT OF COLUMBIA
Capital Caring Kids Hospice, including prenatal support. Service area in the Washington, D.C., Virginia and Maryland region.
FLORIDA
AMEND (Aiding a Mother/Father Experiencing Neonatal & Infant Death), in collaboration with the bereavement program at Florida Hospital Tampa. Contact: AMEND program director Karen Frazier RN, (813) 631-9519. Tampa, Florida
Chapters Health System Circle of Love Center, Chapters Health System. Contact: Jacqueline Warner Garman, LCSW, ACHP-SW, (813) 357-5671. Tampa, Florida
Cherishing the Journey, Inc. Perinatal palliative care and infant loss support, memory boxes, and resources for siblings. Contact: Jennifer Harden, (321) 750-8354. Based in Melbourne, Florida, and serving surrounding counties
Community PedsCare perinatal program, a program of Community Hospice and Palliative Care in collaboration with Wolfson Children's Hospital, Nemours Children's Clinic and the University of Florida. Contact: Director Patrice P. Austin, (904) 407-6302, Jacksonville, Florida
Hope Kids Care pediatric programs including help before birth, a program of Hope HealthCare. Contact: Clinical manager Lisa Arguinzoni, RN CHPN, (239) 985-2486. Serving southwest Florida, based in Fort Myers, Florida
Johns Hopkins All Children's Hospital perinatal palliative care. St. Petersburg, Florida
Perinatal Comfort Care of Tampa. Contact: Kathy DeSanto RN, (727) 401-5383. Tampa, Florida
Suncoast Hospice perinatal loss program. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida
Treasure Coast Hospice pediatric and perinatal hospice and palliative services. Contact: Dalila Rodriguez, (772) 233-3069. Stuart, Florida
University of Florida Health Shands Children's Hospital perinatal palliative care, part of pediatric palliative care. Contact: Perinatal nurse navigator Amy Mosely BSN RN CLC at UFHealth Women’s Center, (352) 265-9769. Gainesville, Florida
Winnie Palmer Hospital for Women and Babies perinatal palliative care, in conjunction with Arnold Palmer Medical Center and Arnold Palmer Hospital for Children. Contact: Taylor Livingston, nurse practitioner for pediatric palliataive care, (321) 841-2245. Orlando, Florida
GEORGIA
Augusta University Department of Obstetrics and Gynecology maternal-fetal medicine specialists fetal hospice. Augusta, Georgia
Hospice Atlanta Visiting Nurse Health System Pediatric Hospice Program, including care before birth. (404) 869-3000. Atlanta, Georgia
Hospice of Northeast Georgia Medical Center perinatal program, (770) 219-8888. Gainesville, Georgia
H.E.A.R.T.strings Perinatal Palliative Care, Northside Hospital Perinatal Loss Office, Atlanta, Georgia
Sacred Journey Perinatal Hospice. Columbus, Georgia
Wellstar Health System Journey Through Bereavement. Contact: Brittney Bottoms. Atlanta, Georgia
HAWAII
Navian Hawaii pediatric hospice care, including perinatal support. Contact: (808) 924-9255. Honolulu, Hawaii
IDAHO
Butterfly's Embrace, a perinatal palliative care service of St. Luke's Health System labor and delivery unit. Contact: Leslie Gunnerson, (208) 381-1807. Boise, Idaho
Daniel's Gift supportive counseling services, St. Luke's Health System Fetal Medicine Program. Contact: Coordinator Jacque Brown RN, (208) 410-9174. Twin Falls, Idaho
Saint Alphonsus Regional Medical Center Perinatal-Pediatric Advanced Care Team. Contact: Perinatal bereavement coordinator Christina Babin, (208) 367-7488. Boise, Idaho
ILLINOIS
Advocate Lutheran General Hospital Perinatal Palliative Care Program. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois
BJC Hospice perinatal hospice care, Alton, Illinois (see also listings in Missouri)
Carle Health Perinatal Bereavement Services, including palliative care support. Urbana, Illinois
Children’s Hospital of Illinois Perinatal Supportive Care. Part of OSF Healthcare System. Contact: Perinatal supportive care coordinator Sarah Greer RNC-OB, (309) 624-2404. Peoria, Illinois
Evanston Hospital of NorthShore University HealthSystem Perinatal Comfort Care Program. Contact: Coordinator Nancy Goldin LCSW, (847) 570-2400 or (847) 570-2883. Evanston, Illinois
Medical Arts Ltd. perinatal hospice support. Contact: Karla Polaschek MD, (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)
Northwest Community Hospital Perinatal Palliative Care. Contact: Jill Kottmeier RN, (847) 618-8415. Arlington Heights, Illinois
NorthShore University HealthSystem Perinatal Comfort Care Program, with several hospitals in the Chicago area. Contact: (847) 570-2880. Chicago, Illinois
Prentice Women's Hospital/Northwestern Memorial Hospital perinatal and neonatal palliative care, in collaboration with the Palliative Care Program at the Ann & Robert H. Lurie Children's Hospital of Chicago. Contact: Neonatologist Natalia Henner MD or neonatologist Jessica Fry MD. Chicago, Illinois
Rush University Medical Center Fetal and Neonatal Medicine Center. Contact: Maria Reyes RNC MSN, (312) 942-7874. Chicago, Illinois
St. Alexius Medical Center Perinatal Palliative Care. Contact: Kristi Moran MSW, (847) 303-7946. Hoffman Estates, Illinois
The Haven Network Perinatal Hospice and Bereavement Center. Rockford, Illinois
UW Health-Northern Illinois. Contact: Neonatologist Paul Furigay MD. Rockford, Illinois
INDIANA
Ascension St. Vincent Hospital Center for Perinatal Loss. Contact: (317) 415-7494. Indianapolis, Indiana
Center for Hospice Care perinatal palliative care. Contact: Bereavement coordinator Holly Farmer MA LMHC, (574) 255-1064. Mishawaka, Elkhart, and Plymouth, Indiana
Community Health Network palliative care, including perinatal, infant, and pediatric hospice and bereavement services. Contact: Patient care coordinator Melissa Fields CPNP-PC CHPPN, (317) 621-4900. Indianapolis, Indiana
Deaconess Health System Hand in Hand Perinatal Palliative Care website and brochure, The Women's Hospital, (812) 842-4200. Newburgh, Indiana
Franciscan St. Francis Health perinatal hospice. Contact: Bereavement coordinator Joni Cutshaw BSN RNC CPLC, (317) 528-5199. Indianapolis, Indiana
Indiana University Health Riley Children's Fetal Center. Multidisciplinary perinatal palliative care support. Contact: (317) 948-5077.
Miriam's Blessing, a ministry of the Diocese of Fort Wayne-South Bend. Fort Wayne, Indiana
St. Elizabeth Healthcare Dearborn Birthing Center Footprints Perinatal Palliative Care. Contact: (859) 301-2500. Lawrenceburg, Indiana
IOWA
Blank Children's Hospital SHINE Program: Perinatal and Pediatric Palliative Care, UnityPoint Health. Contact: (515) 241-5750. Des Moines, Iowa
MercyOne Perinatal Hospice & Bereavement. Contact: (515) 358-3030. Des Moines, Iowa
University of Iowa Stead Family Children’s Hospital Perinatal Palliative Care. Contact: Sheila B. Frascht RN, CHPPN, CPLC, Grief Services/Pediatric Palliative Care, (319) 356-7411. Iowa City, Iowa
Women's Choice Center, including perinatal support. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)
KANSAS
Choices Medical Clinic perinatal hospice, (316) 687-2792. Wichita, Kansas
University of Kansas Medical Center KU Kids Healing Place prenatal and perinatal supportive care. Contact: Kathy Davis PhD, (913) 588-6336. Kansas City, Kansas
See also Children's Mercy Hospital Pediatric Palliative Care and Children's Mercy Fetal Health Center. Kansas City, Missouri
See also Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri
KENTUCKY
Baptist Health Lexington perinatal palliative care. Contact: Perinatal bereavement coordinator Deborah Mueller RN BSN, (859) 639-6904. Lexington, Kentucky
Baptist Health Louisville perinatal palliative care Program. Contact Perinatal bereavement coordinator Bonnie Hibbs MSN RNC CPLC, (502) 897-8327. Louisville, Kentucky
St. Elizabeth Healthcare Maternal-Fetal Center and Family Birth Place Footprints Perinatal Palliative Care. Contact: (859) 301-2500. Edgewood, Kentucky
For support in southeast Kentucky, see also Niswonger Childrens Hospital, East Tennessee State University, Johnson City, Tennessee. Contact: millerra2@etsu.edu. 423-439-7320.
LOUISIANA
Woman's Hospital Perinatal Palliative Care. Contact: Perinatal care coordinator Megan Haley, RN, BSN, RNC-OB, CPLC, (225) 215-7220 or the NICU at (225) 231-5588 ext. 4910 and ask for a palliative care coordinator. Baton Rouge, Louisiana
Hospice of Baton Rouge Perinatal Palliative Care Hospice Program. Contact: (225) 767-4673. Baton Rouge, Louisiana
MARYLAND
Anne Arundel Medical Center Perinatal Loss and Palliative Care Program. Contact: Program coordinator Ann O'Sullivan RN, (443) 481-6989. Annapolis, Maryland
Capital Caring Kids Hospice, including prenatal support. Service area in the Washington, D.C., Virginia and Maryland region.
Gilchrist Kids Perinatal Hospice and Palliative Care, Gilchrist Hospice Care, an affiliate of Greater Baltimore Medical Center. Contact: Program manager at (443) 849-8200. Hunt Valley, Maryland
Isaiah's Promise, parent-to-parent support provided locally and also long-distance. Email. Rockville, Maryland
Johns Hopkins Hospital perinatal palliative care support. Contact: Perinatal bereavement coordinator Dawn Thurman. See also their video. Baltimore, Maryland
Never Alone Perinatal Palliative Care Program, Holy Cross Hospital. Contact: Perinatal services coordinator Bethany Fox, (301) 754-7672. Silver Spring, Maryland
Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland
Shady Grove Medical Center perinatal hospice support. Contact: Clinical nurse manager Amber Richter BSN RNC, (240) 826-6134. Rockville, Maryland
SilverLeaf Counseling, at the Sweeney Center for Perinatal Care, offering specialized support for perinatal palliative care. Contact: Heather J. Silver, LCSW-C, CPLC. Severna Park, Maryland
MASSACHUSETTS
Baystate Home Health & Hospice Pediatric Palliative Care. Contact: Program manager Michele O'Neill LICSW CCLS, (413) 794-6411. West Springfield, Massachusetts
Brigham and Women's Hospital Perinatal Palliative Care Program. Contact: Neonatologist Simon Manning MD, (617) 732-8405. Boston, Massachusetts
Care Dimensions (formerly Hospice of the North Shore & Greater Boston) perinatal palliative care. Contact: Maureen Forbes MS CCLS, (978) 750-9335. Danvers, Massachusetts
Cranberry Hospice Fragile Footprints Pediatric Palliative Care. Contact: Administrator Deborah Dolaway, LICSW, (508) 746-0215. Plymouth, Massachusetts
Good Shepherd Community Care (formerly Hospice of the Good Shepherd) provides perinatal and pediatric hospice and palliative care. Contact: Hallie Kasper NP, (617) 969-6130. Newton, Massachusetts
Hope Health Pediatric Palliative Care, including perinatal support. Contact: (508) 957-0200. Brockton, Massachusetts
Hospice Care in the Berkshires pediatric palliative care, including prenatal support. Contact: Pediatric Palliative Care Coordinator June Green LICSW, (413) 443-2994. Pittsfield, Massachusetts
Mass General Hospital for Children Perinatal Palliative Care. Contact: Perinatal Palliative Care team, (857) 237-CARE (2273). Boston, Massachusetts
Notre Dame Health Care Perinatal Palliative Care. Worcester, Massachusetts
South Shore Hospital Perinatal Complex Care Program, specializing in perinatal and neonatal palliative care and hospice. Contact: Program director Bonnie Arzuaga MD. South Weymouth, Massachusetts
Tufts Medical Center, Center for Perinatal Palliative Care. Contact: Director Linda Kleeman MD, (617) 636-8176. Boston, Massachusetts
MICHIGAN
Arbor Hospice/Hospice of Michigan Anchors Perinatal Program. Contact: Teri Turner RN MS CHPN, director of pediatric programming and clinical excellence. 24-hour Pediatric Support Line, covering most of the state of Michigan: (888) 247-5704. Grand Rapids and southeast Michigan
Angela Hospice Prenatal Program, Livonia, Michigan
Beaumont Health pediatric hospice, including prenatal support. Contact: Pediatric hospice clinical manager Kimberly Stewart RN BSN, 248-743-9400 (main) or 248-417-3607 (cell). Troy, Michigan
Bronson Methodist Hospital Perinatal Palliative Care, (269) 341-7533. Kalamazoo, Michigan
Children's Hospital of Michigan Fetal Care Team, also offering perinatal palliative care. Detroit, Michigan
Mott Children’s Hospital Stepping Stones Pediatric Palliative Care Program. Contact: Perinatal coordinator Elizabeth Goudie, (734) 936-7198. Ann Arbor, Michigan
Perinatal Hospice and Tender Care of Washtenaw County. Contact: director Janet Holtz, (734) 395-0400. Ann Arbor, Michigan
St. Joseph Mercy Hospital. Contact: Perinatal palliative and loss coordinator Rebecca Kanak RNC-OB, CPLC, c-EFM, (734) 712-0350. Ann Arbor, Michigan
MINNESOTA
Allina Health Mother Baby Center at Abbott Northwestern Hospital, in conjunction with Children's Minnesota. Contact: Birth Center case management specialists, (612) 863-7585. Minneapolis, Minnesota
Allina Health Mother Baby Center at United Hospital. in conjunction with Children's Minnesota. Birth planning in special situations (PDF). Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota
CentraCare Health-St. Cloud Hospital's Pediatric Palliative Care Program includes perinatal, neonatal, and pediatric services. Contact: (320) 656-7117. St. Cloud, Minnesota
Children's Minnesota Perinatal Palliative Care & Hospice Program, including care at the Mother Baby Center at Abbott Northwestern in Minneapolis and the Mother Baby Center at United Hospital in St. Paul
Courageous Hearts peer-based prenatal diagnosis support. Contact: (715) 969-4506. Duluth, Minnesota
Hennepin Healthcare Birth Center. Contact: (612) 873-5006 or high-risk clinical care coordinator Tamara Harvanko RN, (612) 873-6552. Minneapolis, Minnesota
Lakewood Health System perinatal hospice, (218) 894-8080 or (800) 525-1033. Staples, Minnesota
M Health Fairview perinatal palliative care, available through the University of Minnesota Masonic Children's Hospital and other M Health Fairview hospitals. Contact: Rachael Stover-Haney MSW LICSW, (612) 273-7528. Minneapolis, Minnesota
Maple Grove Hospital perinatal bereavement services. Contact: Jenny Burgers, (763) 581-2223. Maple Grove, Minnesota
Mayo Clinic Children's Center ComPASS: Comprehensive Pediatric and Adolescent Support Services, including perinatal palliative care. Rochester, Minnesota
Minnesota Birth Center, home-like, freestanding birth centers staffed by certified nurse-midwives and registered nurses, also offering perinatal hospice support. Founder and medical director: Steven E. Calvin MD, perinatologist. Affiliated with Associates in Women's Health, P.A. (612) 545-5311. Locations in Minneapolis and St. Paul, Minnesota
MISSISSIPPI
University of Mississippi Medical Center and Batson Children's Hospital Center for Maternal and Fetal Care perinatal palliative care. Contact: W. Richard Boyte MD, professor of pediatrics and division chief of pediatric palliative medicine. Jackson, Mississippi
MISSOURI
Alexandra's House, Kansas City, Missouri
Barnes Jewish Hospital and Children's Hospital of St. Louis Fetal Care Center Wings Perinatal Hospice Program. St. Louis, Missouri
BJC Hospice Perinatal Hospice Care in St. Louis, Sullivan, and Farmington, Missouri; also in Illinois. See their video
Cardinal Glennon Children's Medical Center Footprints, St. Louis, Missouri
Children's Mercy Hospital Pediatric Palliative Care, in conjunction with Children's Mercy Fetal Health Center. Kansas City, Missouri
Kansas City Hospice & Palliative Care Carousel Perinatal Program, Kansas City, Missouri
MONTANA
Billings Clinic Perinatal Palliative Care. Contact: Diane Arkava LCSW, (406) 247-6344. Billings, Montana
Kalispell Regional Medical Center perinatal palliative care support. Contact: Neonatologist Kristin Veneman DO, (406) 752-5111. Kalispell, Montana
Providence St. Joseph Medical Center perinatal palliative care. Polson, Montana
NEBRASKA
Bryan Medical Center Butterfly Memories. Contact: (402)-489-0200. Lincoln, Nebraska
CHI Health Creighton University Medical Center - Bergan Mercy Perinatal Hospice. Contact: Coordinators Lisa Devall NNP APRN and Emily Burdett NNP APRN, (402) 398-6014. Omaha, Nebraska
CHI Health - St. Elizabeth Hospital EMBRACE Perinatal Palliative Care and Hospice Program. Contact: EMBRACE coordinator, (402) 219-7065. Lincoln, Nebraska
Children's Hospital & Medical Center Fetal Care Center. Omaha, Nebraska
HoriSun Hospice Pediatric and Perinatal Palliative Care. Lincoln, Nebraska
Methodist Women's Hospital Perinatal Comfort Care Program. Contact: perinatal comfort care liaison Nina Mohr BSN RN (402) 354-3488, or clinical nurse educator Mary Killpack MSN RN, (402) 354-5634. Omaha, Nebraska
University of Nebraska Medical Center perinatal palliative care. Omaha, Nebraska
NEW JERSEY
Unterberg Children’s Hospital at Monmouth Medical Center Anchor Program: Perinatal and Pediatric Palliative Care. Contact: Maria Graminski LCSW 732-923-7716. Long Branch, New Jersey
Valley Health System Wings of Compassion perinatal hospice support, part of the Butterflies Program. Contact: Dyana Thompson RN MSN CPN, (201) 291-6249. Paramus, New Jersey
Virtua Hospital Lifecare for Little Ones Perinatal Palliative Care. Contact: Ann Coyle RN BSN (856) 247-2232. Voorhees, New Jersey
NEW MEXICO
University of New Mexico Children's Hospital Special Delivery team. Contact: Newborn-perinatal medicine specialist Rebecca Moran MD, (505) 272-8955. Albuquerque, New Mexico
NEW YORK
Bereavement Center of Westchester Maggie Rose Perinatal Bereavement. Contact: Patty Donovan-Duff, (914) 961-2818, ext. 305. Tuckahoe, New York
CareFirst Perinatal Palliative Care (formerly Southern Tier Hospice and Palliative Care), Corning, New York
Catholic Health Gabriel's Courage Perinatal Program. Contact: (631) 465-6363. Manhattan, Nassau and Suffolk, New York
CHOICES Pediatric Palliative Care Program, SUNY Upstate Medical University. Contact: Irene Cherrick MD, (315) 464-5294. Syracuse, New York
Columbia University Children's Health/New York-Presbyterian Morgan Stanley Children's Hospital Neonatal Comfort Care program, including prenatal support. See also video, and brochures in English and Spanish. Contact: Medical director and neonatologist Elvira Parravicini MD, New York, New York
CompassionNet pediatric and perinatal palliative care, part of Lifetime Care Home Health and Hospice. Contact: Alyssa Gupton LCSW, (800) 308-3914 or (585) 214-1333. Support available in Rochester, Buffalo, Syracuse, Utica, Binghamton, Elmira, and surrounding areas.
Footprints on the Heart, Sisters of Charity Hospital. Contact: Nurse coordinator Fran Kane, (716) 862-1678. Buffalo, New York
Good Samaritan Hospital Gabriel's Courage perinatal hospice. Contact: Maribeth McKeever LCSW-R, (631) 828-7628. West Islip, New York
Good Samaritan Hospital Perinatal Bereavement Program. Contact: Mary Radatovich LMSW LCSW, (845) 368-5297. Suffern, New York
Healing Grace Perinatal Hospice. Contact: Sarah Wojtaszek, (518) 254-5505. Lyon Mountain, New York
Hospice & Palliative Care Buffalo Perinatal Program. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York
Knafayim (Wings of Hope), a Jewish support organization for those experiencing pregnancy loss and infertility. Contact: Malkie Klaristenfeld, director of services for pregnancy loss, (718) 925-2113. New York, New York
Lenox Hill Hospital Neonatal-Perinatal Palliative Care Program. Contact: Kavita Kasat MD, (212) 434-3626. New York, New York
Northwell Health Hospice Care in Westchester and Putnam. Contact: Maribel Nazario, (914) 666-4228, ext. 336. Tarrytown, New York
Northwell Health Hospice Care Network Perinatal Support. Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York
Northwell Health Hospice Care Network Perinatal Support. Woodbury, New York
St. Peter's Healthcare System, Regional Medical Campus of Drexel University College of Medicine Gianna Center, including perinatal support. Contact: Anne Nolte MD, (212) 481-1219. New York, New York
University of Rochester Perinatal Supportive Care Program, University of Rochester Medical Center. Contact: Director Erin Denney-Koelsch MD, assistant professor of medicine and pediatrics, (585) 273-1154. Rochester, New York
NORTH CAROLINA
AuthoraCare Kids Path pediatric hospice care, including perinatal support. Contact: Perinatal palliative care social worker Leah Grant LCSW, (336) 621-8800, ext. 2276. Greensboro and Burlington, North Carolina
Be Not Afraid, a private non-profit organization which provides comprehensive case management support to parents carrying to term following a prenatal diagnosis and for one year following birth. Also provides long-distance support nationally. Charlotte, North Carolina
Brenner Children's Wake Forest Baptist Health Care Always perinatal and neonatal palliative care, Winston-Salem, North Carolina
Cardinal Kids Palliative Care and Hospice perinatal and pediatric palliative care. Contact: (828) 466-0466. Newton, North Carolina
Duke University Hospital perinatal support provided by collaboration of Neonatology and Pediatric Quality of Life and Palliative Care Program. Contact: Monica Jakubowski, (919) 219-7650. Durham, North Carolina
Eva's Footprints perinatal bereavement support, Mountain Area Pregnancy Services. Contact: (828) 252-1306. Asheville, North Carolina
Levine Children’s Hospital Pediatric Advanced Care Team (PACT), Carolinas HealthCare System. Contact: Palliative care social worker Allie Shukraft MAT MSW LCSWA, (704) 446-2811. Charlotte, North Carolina
Transitions Kids, a division of Transitions LifeCare. Provides prenatal counseling in the home, accompanies parents to prenatal appointments if desired, and collaborates with local hospitals for continuity of care. Contact: Lily Gillmor MSPC, BSN, RN, CHPPN, director of Transitions Kids, (919) 719-6874, 24/7 Nurse Line: (919) 980-5439. Raleigh, North Carolina
University of North Carolina Collaborative for Maternal and Fetal Health Perinatal Palliative Care, Chapel Hill, North Carolina
For support in western North Carolina, see also Niswonger Childrens Hospital, East Tennessee State University, Johnson City, Tennessee. Contact: millerra2@etsu.edu. 423-439-7320.
NORTH DAKOTA
Essentia Health Caring Hearts Perinatal Program. Fargo, North Dakota
Sanford Health Maternal Fetal Medicine, including palliative care. Fargo, North Dakota
OHIO
Akron Children's Hospital Haslinger Family Pediatric Palliative Care Center. Contact: Bereavement Coordinator Nancy Carst LISW-S CT APHSW-, or Nurse Case Manager Stephanie Allen MSN RN-BC, (330) 543.3343. Akron, Ohio
Cincinnati Children's Hospital Medical Center StarShine Perinatal Hospice, Cincinnati, Ohio
Cleveland Clinic Maternal-Fetal Medicine. Contact: Donna Patno CNM DNP, (866) 864-0430. Cleveland, Ohio
Dayton Children's Hospital Fetal Care Center, including perinatal hospice support. Dayton. Onio
Hospice of the Western Reserve Perinatal Care Program and brochure. Cleveland, Ohio
Mercy Health St. Vincent's Medical Center perinatal palliative care. Contact: Angie Westenkirchner RN, maternal-fetal medicine high-risk patient navigator, (419) 251-8065. Toledo, Ohio
Miami Valley Hospital/Dayton Children's Hospital Fetal to Newborn Care Center, including perinatal hospice support. Dayton, Ohio
Nationwide Children's Hospital Fetal Center Perinatal Palliative Care. Columbus, Ohio
Ohio Fetal Medicine Collaborative, a consortium of six hospitals (Dayton Children's, Mount Carmel, Nationwide Children's, Miami Valley, OhioHealth, and Ohio State University Wexler Medical Center), with services including perinatal palliative care.
University Hospitals Rainbow Babies & Children's Pediatric Palliative Care Center. Contact: Ann Marie Dragon RN BSN MBA, clinical coordinator, (216) 286-4215. Cleveland, Ohio
Sufficient Grace Ministries Perinatal Hospice and Bereavement Services, providing in-person and online peer-based support. Contact: Kelly Gerken, (419) 722-6978. Deshler, Ohio
Toledo Hospital/Toledo Children's Hospital perinatal palliative care, ProMedica Health System. Contact: Social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio
OKLAHOMA
Helmerich Women's Health Center SILAS Program perinatal palliative care, part of Hillcrest Healthcare System. Tulsa, Oklahoma
University of Oklahoma Medical Center Pediatric Palliative Care Team (PaCT), including prenatal support. Contact: (405) 271-2387. Oklahoma City, Oklahoma
OREGON
Bridges Pediatric Palliative Care, including perinatal support, at Doernbecher Children’s Hospital at Oregon Health & Science University. Contact: Medical director Bob Macauley, Guy Keplinger R.N., social worker Lindsay Wooster, Chaplain Maija Mikkelsen, nurse practitioner Monica Holland, Natalie Lanocha M.D., Sara Taub M.D., Tyler Tate, M.D., (503) 494-6201, bridges@ohsu.edu. Portland, Oregon
Providence Home Health, Hospice and Palliative Care, including perinatal palliative care. Newberg, Oregon
Providence Portland Medical Center Family Maternity Center, including perinatal palliative care. Portland, Oregon
PENNSYLVANIA
Allegheny Health Network Olivia’s Angels Perinatal Palliative Care Program. Pittsburgh, Pennsylvania
Children's Hospital of Philadelphia Perinatal Palliative Care at the Center for Fetal Diagnosis and Treatment. Contact: Perinatal palliative care and bereavement, (800) 468-8376. Philadelphia, Pennsylvania
Delaware County Memorial Hospital perinatal palliative care. Contact: Perinatal Bereavement Services at (610) 394-4798. Drexel Hill, Pennsylvania
Delaware Hospice Katybug Pediatric Program, including support before and after birth. Contact: Director of admissions Erica Galbreath, (302) 478-5707. Serving families throughout Delaware and southeastern Pennsylvania.
Homeland Hospice Pediatric Care, including perinatal support. Contact: Pediatric hospice program director Caroline McCardell RN, (717) 221-7890. Harrisburg, Pennsylvania
Geisinger Janet Weis Children’s Hospital perinatal palliative care. Contact: Perinatal palliative care coordinator and clinical care specialist Mindy Lewis MSW LSW, (570) 214-4621. Danville, Pennsylvania
Jefferson Health CORE Perinatal Palliative Care Team. Contact: Coordinator Jane M. Cavanaugh RN, (215) 955-8346. Philadelphia, Pennsylvania
Lily's Gift, a collaboration of the Office for Persons with Disabilities, the Office of Life and Family, and Catholic Social Services of the Archdiocese of Philadelphia. Contact: Sr. Kathleen Schipani, (215) 587-3530 or Kathleen Bevenour, (215) 945-2550. Philadelphia, Pennsylvania
Penn Medicine Women & Babies Hospital Perinatal Palliative Care. Contact: Perinatal palliative care coordinator Jennifer Potter, MDiv BCC, (717) 544-3418. Lancaster, Pennsylvania
Pennsylvania Hospital perinatal palliative care. Philadelphia, Pennsylvania
St. Christopher's Hospital for Children perinatal palliative care support. Contact: Palliative Care Program (215) 427-8352 or the Regional Fetal Evaluation Center (215) 427-5521. Philadelphia, Pennsylvania
Sunflower Pediatric Program Hospice and Community Care perinatal care. Contact: (877) 777-5559 or via online form. Lancaster, Pennsylvania and surrounding areas
The Promise: Pittsburgh's Perinatal Palliative Care Initiative, a program of Catholic Palliative Services, a division of Catholic Hospice. Contact: Perinatal palliative care coordinator Lori Heil, (866) 933-6221. Pittsburgh, Pennsylvania
University of Pittsburgh Perinatal Supportive Care Program at Children’s Hospital of Pittsburgh and Magee Women’s Hospital, a comprehensive program composed of a board-certified hospice and palliative care physician, a physician assistant, a manager with extensive hospice experience, and a bereavement coordinator. Care is coordinated with specialists in maternal-fetal medicine, neonatology, and genetics at the Fetal Diagnostic Treatment Center at UPMC. Families are not required to deliver at a UPMC facility in order to receive care. Contact: Program manager Carol May, (412) 692-3234.
WellSpan York Hospital Loving with Grace perinatal palliative care program. Contact: Program coordinators Amanda Delridge RN and Jill Royer BSN, (717) 851-4730. York, Pennsylvania
West Penn Hospital PEACE Program (Perinatal, End of Life, and Compassionate Care Experience), Allegheny Health Network Perinatal Associates. Contact: Kathleen Maher MS LCGC, (412) 578-3853. Pittsburgh, Pennsylvania
RHODE ISLAND
My Child, My Gift, parent support sponsored by the Diocese of Providence. Providence, Rhode Island
Women & Infants' Hospital of Rhode Island Perinatal Palliative Care Program. Contact: Neonatologist Beatrice Lechner MD, (401) 274-1100. Providence, Rhode Island
SOUTH CAROLINA
COMPASS (Comprehensive Perinatal, Pediatric, and Adolescent Support Service) at Palmetto Health Children's Hospital. Contact: Nurse coordinator Debbie Kamowski RN BSN CHPPN, (803) 434-2249. Columbia, South Carolina
Medical University of South Carolina Children's Hospital Palliative Care. Contact: Palliative care program medical director Conrad Williams MD FAAP, (843) 792-6062. Charleston, South Carolina
Prisma Health Children's Hospital Pediatric Palliative Care, including perinatal support. Contact: Supportive Care Medical Director Arun L. Singh, MD, FAAP, FAHPM, (864) 546-8955. Greenville, South Carolina
SOUTH DAKOTA
Avera McKennan Hospital Palliative Care Service. Contact: Medical director Joann Bennett DO FACOI, Nancy Terveen NP (605) 322-8993; Michele Snyders MSW, Anna Perry MSW, (605) 322-8273. Sioux Falls, South Dakota
Monument Health perinatal palliative care support. Contact: Michelle Sieveke RN MSN, director, Home Plus Home Health and Hospice, Rapid City 605-755-7710 and Spearfish, 605-644-4444
Sanford Children's Hospital PRISM Pediatric Palliative Care. Contact: Daniel Mark MD or Pam Koepsell APRN CNS CPNP, (605) 312-3938. Sioux Falls, South Dakota
Sanford Health Ava’s House, intergenerational hospice house including infants and children. Sioux Falls, South Dakota
TENNESSEE
Allied Health System Kangaroo Kidz perinatal and pediatric palliative care. Cleveland, Tennessee
Alive Hospice perinatal/pediatric team. Nashville, Tennessee
Ascension St. Thomas Midtown Hospital perinatal hospice program. Nashville, Tennessee
Hospice of Chattanooga Perinatal Care, Chattanooga, Tennessee
Jackson-Madison County General Hospital Women's Center perinatal palliative care. Contact: Perinatal bereavement coordinator LeighAnn Sutton LBSW, (731) 541-6246. Jackson, Tennessee
Methodist LeBonheur Healthcare Quality of Life for All (QoLA) Kids perinatal hospice care. Contact: Shayla Williamson, director, RN (901) 378-8419. Memphis, Tennessee
Monroe Carell Jr. Children's Hospital at Vanderbilt Pediatric Palliative Care, through the Fetal Center. Contact: Genetic counselor Martha Dudek MS CGS, (615) 343-4673. Nashville, Tennessee
Niswonger Childrens Hospital, East Tennessee State University, Johnson City. Contact: millerra2@etsu.edu. 423-439-7320. Prenatal diagnosis, perinatal palliative care and comfort care planning for families in northeast Tennessee, southwest Virginia, western North Carolina and southeast Kentucky.
St. Jude Children's Research Hospital Division of Quality of Life and Palliative Care. Memphis, Tennessee
TEXAS
Cook Children's Perinatal Palliative Care Program. Contact: NICU nurse manager Sheralyn Hartline, palliative care medical director Todd Pearson MD, or neonatologist and palliative care specialist Terri Weinman DO, (682) 885-4283. Dr. Weinman can also be reached at Texas Health Harris Methodist Hospital Fort Worth (see listing below). Fort Worth, Texas
Community Hospice of Texas Little Doves Pediatric Hospice Program, including prenatal support. Video. Dallas-Fort Worth and Waco, Texas
Dell Children's at Home perinatal palliative care. Contact: Sasha Griffith RN BSN CHPPN CPLC, Dell Children's Medical Center, (512) 324-9999 x87093. Austin, Texas
Houston Hospice Butterfly Program perinatal hospice, Houston, Texas
Hospice of Wichita Falls, providing pediatric and perinatal hospice & palliative care across a 12-county area. Contact: Medical director J. Robert Parkey MD MTS HMDC or chief of clinical services Shelby Crabtree RN, (940) 691-0982. Wichita Falls, Texas
Jerome's Hope, a support ministry for prenatal diagnosis or neonatal death offered through the Archdiocese of Galveston-Houston. Houston, Texas
Journey of Hope/Viaje de Esperanza, University of Texas Health Science Center at San Antonio. Contact: Peggy Humm MSN RN, (210) 843-4719. San Antonio, Texas
Kinder Hope Perinatal Hospice Care, Hope Hospice, (830) 625-7525 or (800) 499-7501. New Braunfels, Texas
Love's Legacy Perinatal Hospice Support Care, Next Step Women's Center. Contact: Bethann Richard RN, (817) 295-4101 or (817) 932-5488. Burleson and Fort Worth, Texas
Medical City Women's and Children's Hospital Maternal Fetal Institute palliative care. Contact: Michelle Jones RN, (972) 566-8585. Dallas, Texas
Memorial Hermann pediatric hospice program, including perinatal care. Houston, Texas
Providence Children's Hospital/Sierra Providence La Mariposa Hospice Treasured Moments perinatal palliative care. Contact: (915) 577-7870. El Paso, Texas
Texas Fetal Center, University of Texas Health Science Center, Children's Memorial Hermann Hospital. Contact: Karen Moise RN, Fetal Center clinical coordinator, (832) 325-7288; Gina Leigh Jones RN, coordinator of bereavement and supportive care services, (713) 704-5068; or Kim Cole RNC NNP-BC or Kristie Cullum RN BSN CHPN, (713) 704-0495. Houston, Texas
Texas Health Harris Methodist Hospital Fort Worth WeeCare perinatal and neonatal palliative care program. Contact: Medical director Terri Weinman DO, leader of the perinatal palliative care team for Pediatrix Medical Group of Fort Worth, (817) 250-2892. Dr. Weinman can also be reached at Cook Children's Medical Center (see listing above). Fort Worth, Texas
University Health perinatal palliative care. San Antonio, Texas
University of Texas Medical Branch Perinatal Hospice and Palliative Care. Galveston, Texas
UTAH
Intermountain Health Care Angel Watch. Contact: (801) 698-4486. Salt Lake City, Utah
Primary Children's Medical Center/University of Utah Health Care Rainbow Kids Pediatric Palliative Care, including prenatal support. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah
VERMONT
University of Vermont Medical Center. Contact: Pediatric Advanced Care Team Associate Director Kaitlin R. Ostrander MD. Burlington, Vermont
VIRGINIA
Bon Secours St. Mary's Noah's Children perinatal care. Richmond, Virginia
Capital Caring Kids Hospice, including prenatal support. Service area in the Washington, D.C., Virginia and Maryland region.
Edmarc Hospice for Children Bridges of Hope Perinatal Program. Contact: (757) 967-9251. Portsmouth, Virginia
Embracing Grace parent-to-parent peer support. Richmond, Virginia
Inova Fairfax Hospital Perinatal Concerns Program. Contact: Kelly Gallo RN, (703) 776-6371. Falls Church, Virginia
Mary Washington Hospital Family Birth Place perinatal bereavement services. Contact: Perinatal bereavement coordinator Tammy Ruiz Ziegler RN CPLC, (540) 741-3268. See also her video about perinatal hospice, translated into multiple languages. Fredericksburg, Virginia
St. Francis Medical Center perinatal palliative care program. Contact: Perinatal bereavement coordinator Michelle Henderson RNC-OB, CCL, (804) 594-3250, (804) 594-3291. Midlothian, Virginia
Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia
For support in southwest Virginia, see also Niswonger Childrens Hospital, East Tennessee State University, Johnson City, Tennessee. Contact: millerra2@etsu.edu. 423-439-7320.
WASHINGTON
Providence Hospice of Seattle perinatal care, palliative care and concurrent hospice care through the Stepping Stones Perinatal Program in King County and the Carousel Program in Snohomish County. Contact: (888) 432-5464. Seattle, Washington
Providence Kadlec Regional Medical Center Birth Center, including perinatal palliative care. Richland, Washington
Providence Sacred Heart Medical Center Perinatal Supportive & Palliative Care Forget-Me-Not Program. Spokane, Washington
WEST VIRGINIA
Byron C. Calhoun MD, professor and vice chair, Maternal-Fetal Medicine Division, West Virginia University-Charleston and Charleston Area Medical Center Perinatal Diagnostic Center. Contact: (304) 388-1599. Charleston, West Virginia
Kanawha Hospice Care Kids Path, part of West Virginia HospiceCare, including prenatal support. Charleston, West Virginia
West Virginia University Medicine Children's Hospital Perinatal and Pediatric Supportive Care Program. Contact: Pediatric palliative care physician Joshua Dower MD. Morgantown, West Virginia
WISCONSIN
Ascension NE Wisconsin St. Elizabeth campus Perinatal CARE Program. Contact: Sherah Sroka MSW, (920) 738-2094. Appleton, Wisconsin
Beyond the Rain, doula services and peer support in Janesville, Wisconsin
Children's Hospital of Wisconsin Perinatal Palliative Care. Milwaukee, Wisconsin
Gundersen Health System perinatal palliative care. Contact: Bereavement specialist Marie A. Walter MS RN C-EFM CPLC, (608) 775-3796 or (800) 362-9567 ext. 53796. La Crosse, Wisconsin
HSHS St. Vincent Hospital pregnancy and infant loss support. Contact: Perinatal palliative care and bereavement coordinators Lana Reinke RN CPLC (NICU) or genetic counselor Theresa Shuck MS MA CGC CPLC. Green Bay, Wisconsin
UnityPoint Health Meriter Hospital Center for Perinatal Care, including Perinatal Palliative Care. Madison, Wisconsin
International
ARGENTINA
Hospital Nacional Prof. Alejandro Posadas pediatric palliative care, including prenatal support. Contact: Romina Molina MD or Fernando Tello MD. Buenos Aires, Argentina
AUSTRALIA
Children's Health Queensland Paediatric Palliative Care, including antenatal referrals, Lady Cilento Children's Hospital. South Brisbane, Queensland, Australia
Hummingbird House Children's Hospice perinatal hospice programme. Contact: Nurse practitioner and perinatal hospice lead Kelly Oldham. Queensland Australia
King Edward Memorial Hospital Perinatal Loss Service, including perinatal palliative care. Contact: Clinical midwife specialist Sonya Criddle, tel. (08) 6458 2128 or (08) 6458 2222 and ask for pager 3430. Subiaco, Western Australia
Perinatal Palliative Care, sponsored by Catholic Health Australia, Mater Health, Mercy Health, and Calvary Health Care, with 13 hospital and clinic locations in Adelaide, Brisbane, Canberra, Hobart, Launceston, Mackay, Melbourne, North Queensland, and Wagga Wagga.
Women's and Children's Hospital paediatric palliative care. Contact: Maternal-Fetal Medicine coordinator or pediatric palliative care team at 08 8161 7000. North Adelaide, Australia
BRAZIL
Hospital das Clínicas da Universidade de São Paulo perinatal palliative care. Contact: Joelma Queiroz Andrade MD. São Paulo, Brazil
CANADA
Home Hospice Association prenatal and perinatal hospice, with services available in cities including Cambridge, Guelph, Hamilton-Halton, Kitchener, Niagara, Ottawa, Toronto.
Alberta
Alberta Children's Hospital Children's Hospice and Palliative Care Service, also accepting referrals for perinatal hospice. Contact: Clinical nurse specialist Kathryn da Silva, (403) 955-5460. Calgary, Alberta
Family Physician Navigator program, accepting referrals (from physicians or self-referrals) for family physician support to navigate high risk pregnancies with life-limiting illnesses. Contact: Thomas Bouchard MD, (403) 271-5124. Calgary, Alberta
Capital Health Pediatric Palliative Care Program, Child Health Program. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), the ASSIST team at Stollery Children's Hospital, or email Tara Wren. Edmonton, Alberta
British Columbia
Canuck Place Children’s Hospice offers comprehensive pediatric hospice and palliative care, including perinatal support. Email or phone: (604) 731-4847. Vancouver, British Columbia
Manitoba
Winnipeg Regional Health Authority Palliative Care Program, including perinatal consultation and support. Contact: (204) 237-2400. Winnipeg, Manitoba
Ontario
London Health Sciences Centre Perinatal Hospice. Contact: Genetic counsellor Stephanie Ho, Medical Genetics Program, (519) 685-8500, ext. 52428. London, Ontario
McMaster Children's Hospital Quality of Life and Advanced Care (QoLA Care), including perinatal palliative care. Contact: Jennifer Callen, nurse practitioner - pediatrics, 905-521-2100 x73373, email qolacare@hhsc.ca. Hamilton, Ontario
Roger Neilson House pediatric hospice, offering perinatal palliative care in collaboration with the Children’s Hospital of Eastern Ontario. Contact: Perinatal Hospice Coordinator Lesley Sabourin RN CHPCN(C), (613) 523-6300 x 4671 or email. Ottawa, Ontario
Trillium Health Partners perinatal and paediatric palliative care services. Contact: Palliative care facilitator Gurjit Sangha, (905) 813-1100 ext. 6573. Mississauga, Ontario
University of Toronto Hospital for Sick Children Paediatric Advanced Care Team, including antenatal support. See also this explanation of palliative care for newborns. Contact: Palliative care and grief support coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario
Nova Scotia
IWK Health Pediatric Advanced Care Team. Contact: (902) 470-7262 to connect with the team's physicians and clinical nurse specialist. Halifax, Nova Scotia
Québec
Montreal Children's Hospital/McGill University Health Centre Pediatric Palliative Care Program, including antenatal consultations and bereavement followup. Montreal, Québec
CHILE
Acompañar-es Perinatal Palliative Care, UC Christus Hospital. Contact: Dr. Jorge Neira, Department of Gynecology and Obstetrics UC, (56) (2) 23548077 or email. Santiago, Chile
CZECH REPUBLIC
Cesta Domů (Going Home), hospice care including prenatal counseling. Contact: Head of support team and psychosocial worker Jindřiška Prokopová. Prague, Czech Republic
The Institute for the Care of Mother and Child, including perinatal palliative care support. Prague, Czech Republic
Perinatální Hospic Dítě v Srdci (Child in the Heart). Contact: Director Alena Peremská, tel. 731 188 116 or email; also on Facebook. Team providing personal support in Hradec Kralové, Kostelec nad Orlici and surrounding areas in the Czech Republic
Perinatální hospicová a paliativní péče, resources and list of medical professionals available to help in Prague, Brno, Plzeň and other cities in the Czech Republic
See also:
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Darovaný čas (2020) Czech translation of A Gift of Time by Amy Kuebelbeck and Deborah L Davis Ph.D., available from Cesta domů, a palliative care organization based in Prague
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Perinatální paliativní péče by K. Ratislavová (Praha: Grada Publishing, 2016).
ENGLAND
Acorns Children's Hospice, including antenatal support. Birmingham, Worcester, and Walsall, England
Bradford Teaching Hospitals Butterfly Pathway perinatal palliative care. Contact: Neonatologist Chakra Vasudevan MD. Bradford, England
Chelsea and Westminster Hospital perinatal palliative care. Contact: Alexandra Mancini, lead nurse for Complex, Palliative and Bereavement Care, tel: 07805 739785. London, England
Claire House Children's Hospice perinatal palliative care. Contact: Katrina Williams, perinatal palliative care nurse consultant, 0151 334 4626, mobile 07824326068. Bebington, Wirral, England
Forget Me Not Children's Hospice Neonatal Inreach Project, including antenatal support for families whose baby has been diagnosed with a life-limiting anomaly; Russell House, tel. 01484 411042. Huddersfield, West Yorkshire, England
Martin House antenatal and neonatal support. Leeds, England
The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.
Together for Short Lives, a U.K. charity for children with life-threatening and life-limiting conditions, also provides prenatal support and information.
University of Oxford Perinatal Palliative Care, in conjunction with Helen and Douglas House children's hospice. Contact: Prof. Dominic Wilkinson, 01865 22135.
Walking With You, an independent specialist midwifery service, working in conjunction with the NHS. Contact: Angie Bowles, 07974 729566. Based in Keymer, West Sussex and covers East Sussex, West Sussex and Surrey.
See also the online perinatal palliative care training available from the Royal College of Midwives.
FRANCE
Department of Neonatology, University Hospital North; Assistance Publique-Hôpitaux de Marseille. Contact: Barthélémy Tosello MD. Marseille, France
Soins Palliatifs et Accompagnement en Maternité, SPAMA (Palliative Care and Support in Pregnancy). See also the book Un enfant pour l'éternité by Isabelle de Mézerac, also available in Spanish and Portuguese
GERMANY
Parents Helping Parents: Continuing a pregnancy after a prenatal diagnosis. Book: "Weitertragen: Wege nach pränataler Diagnose" ("Further: After prenatal diagnosis"). See also palliative-geburt.info. Bruck, Germany
University Hospital Charité Berlin neonatal palliative care, including prenatal counseling and support. Berlin, Germany
See also:
"Principles for palliative care and bereavement support in neonatology and perinatal medicine" (in German) by Palliativ- und Trauerbegleitung in der Neonatologie (PaluTiN)
HUNGARY
Perinatal Intensive Center, 2nd Department of Obstetrics and Gynecology, Semmelweis University, Contact: Eva Czemmel or István Kocsis MD PhD DEAA, head of neonatal services, tel: +36-1-3137856. Budapest, Hungary
IRELAND
Coombe Women & Infants University Hospital antenatal support. Contact: Director of fetal medicine Carmen Regan MD or Brid Shine, clinical midwife specialist in bereavement and mental health, 00 353 (1) 408 5200. Dublin, Ireland
Perinatal bereavement support at Cork University Maternity Hospital perinatal bereavement support. Contact: Hospital Chaplain Daniel Nuzum, 00 353 (21) 492 0500. Wilton, Cork, Ireland
For parent-to-parent support: A Little Lifetime Foundation, a Dublin organization providing support to bereaved parents including those with a prenatal diagnosis, and One Day More and Every Life Counts, for those continuing a pregnancy after a prenatal diagnosis
ITALY
Cà Foncello Hospital Perinatal Palliative Care Program, providing prenatal and neonatal support for families whose babies have life-threatening and life-limiting conditions. Contacts: Nadia Battajon or neonatal intensive care unit director Paola Lago MD, tel. +39 0422 322666. Treviso, Italy
Gemelli Hospital center for perinatal palliative care. Contact: Perinatal hospice director Giuseppe Noia MD. See also Fondazione "Il Cuore in una Goccia" Onlus for professional education and advocacy. Rome, Italy
La Quercia Millenaria c/o CAFT Fiano Romano. Contact: Sabrina Pietrangeli Paluzzi, tel. 0765-451160, cell 3208010942. Rome, Italy
La Quercia Millenaria perinatal hospice at Santa Chiara Hospital, University of Pisa. Contact: Bianca De Pascalis, cell 3470445933. Pisa, Italy
La Quercia Millenaria c/o Salesi Hospital. Contact: Fernando and Valentina Taborro, tel. 335-7691233. Ancona, Italy
La Quercia Millenaria c/o Azienda Ospedaliera Carlo Poma. Contact: Samuela Boni, tel. +393479780079, or Alberta Gavioli MD, tel. +393357070703. Mantova, Italy
La Quercia Millenaria Lombardia, based in Mantova and also providing support in other provinces. Contact: +39 351 688 5618 or email.
La Quercia Millenaria Toscana, based in Livorno and also providing support in other provinces. Contact: +39 347 044 5933 or email.
La Quercia Millenaria Veneto, based in Treviso and also providing support in other provinces. Contact: +39 351 607 5501 or email.
Percorso Giacomo (James' Path) perinatal hospice, Sant'Orsola Hospital, University of Bologna. Contact: Neonatologist Chiara Locatelli MD or by email . Bologna, Italy
Perinatal palliative care group, Departments of Neonatology and Obstetrics, Poliambulanza Hospital. Contact: Benedetta Allais MD, phone 00393290276252. Brescia, Italy
Perinatal palliative care group, Departments of Neonatology and Obstetrics, University of Milano-Bicocca; San Gerardo Hospital – MBBM Foundation. Contact: Giuseppe Paterlini MD, phone: +39392339197. Monza, Italy
Ospedale Evangelico Betania Comfort Care, providing prenatal and neonatal support for families whose baby has life-threatening and life-limiting conditions. Contact: Annalisa Agangi MD, Department of Obstetrics; or Franca Sarracino RN, Department of Neonatology, tel 3389832624. Naples, Italy
See also these books:
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Aspettando Gabriel, by Amy Kuebelbeck (Edizioni San Paolo), available from Amazon.it
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Giacomo, il mio piccolo missionario, by Silvia Fasana
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Il figlio terminale: Risposte di amore straordinario all'ordinaria eutanasia prenatale, by Giuseppe Noia and Sabrina Pietrangeli Paluzzi
MEXICO
ECA, Red de Apoyo Ante Muerte Gestacional y de La Niñez Temprana. Contact: Monica Díaz, tel. +52 554352448. Mexico City, Mexico
Hospital Civil de Guadalajara Juan I. Menchaca. Contact: Yuriko Nakashima MD, tel. +52(33) 36183962, ext. 1307. Guadalajara, Jalisco, Mexico
La Casa del Corazon. Contact: Erika Ortiz, tel. 044 55 2069 9935. Mexico City, Mexico
NEW ZEALAND
Starship Children's Hospital pediatric palliative care, including antenatal care. Auckland, New Zealand
The Therese Programme, providing perinatal hospice information and support after an adverse prenatal diagnosis; a project of Family Life International NZ. Auckland, Poirirua, and Dunedin, New Zealand
NICARAGUA
Centro de Coordinación Para El Acompañimiento de Madres con un Hijo/a Terminal, Associación de Médicos Catolicos, Humanae Vitae. Contact: Walter Zamora Palma MD, Rafael Diaz Salazar MD, Juan Herrera Salazar MD, tel. 2270 3359, 2278 1169. Managua, Nicaragua
NORWAY
Hospice i mors liv —A virtual "hospice in the womb" that offers guidance and peer support, throughout the pregnancy and after. See also the e-book Evy Kristine: Retten til et annerledesbarn. Contact: Siri Fuglem Berg MD PhD, tel. +47 90 70 10 11. Gjovik, Norway
Norwegian Association for Children’s Palliative Care (Foreningen for barnepalliasjon) perinatal palliative care advocacy and education; Hospice i mors liv (hospice in the womb) brochure. Kristiansand, Norway
PARAGUAY
Fundación Juan Pablito , "la vida compatible con el amor." Asunción, Paraguay
POLAND
Gajusz Foundation pediatric and perinatal hospice care. Lodz, Poland
Hospicjum dla Dzieci Dolnego Śląska, including perinatal hospice care. Wroclaw, Poland
Hospicyjna Opieka Perinatalna (Perinatal Hospice Care), Fr. Dutkiewicz Hospice, Hospice Foundation. Gdansk, Poland
Hospicjum Pomorze Dzieciom, Hospicjum Perinatalne Tulipani pediatric and perinatal hospice care. Contact: Anna Jędrzejczyk. Gdańsk, Poland
Krakowskie Hospicjum dla Dzieci imienia księdza Józefa Tischnera, including perinatal hospice care. Krakow, Poland
Śląskie Hospicjum Perinatalne, Katowice, Poland
Warsaw Perinatal Hospice and Perinatal Ultrasound Clinic. Warsaw Poland.
Wroclaw Hospice for Children Hospicjum Perinatalne. Wroclaw, Poland
See also:
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Dar czasu: O kontynuowaniu ciąży z nieuleczalnie chorym dzieckiem (Polish translation of A Gift of Time) by Amy Kuebelbeck and Deborah L Davis Ph.D., available from Krakowskie Hospicjum dla Dzieci im. ks. Józefa Tischnera, Krakow.
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Perinatal palliative care standards in Polish ("Standardy perinatalnej opieki paliatywnej") from Fundacja Warszawskie Hospicjum dla Dzieci.
SCOTLAND
Perinatal palliative care pilot project, National Health Service Lothian. Contact: Neonatologist Edile Murdoch MD. Edinburgh, Scotland
SINGAPORE
KK Women’s and Children’s Hospital, part of an academic medical center affiliated with National University of Singapore and NUS-Duke University Medical School. Contact: Palliative consultant Komal Tewani MBBS, MMED (FM), MCFP (S), FAMS. Singapore
SOUTH AFRICA
Sunflower Children's Hospice. Bloemfontein, South Africa
SPAIN
HSJD Hospice Perinatal Program, Hospital Sant Joan de Déu. Contact: Ana Martín Ancel MD, Department of Neonatology. Barcelona, Spain
Hospital Virgen de la Salud de Toledo Perinatal Palliative Care Project. Contact: Ana Belén Escobar MD, Department of Neonatology. Toledo, Spain
Clinica Universidad de Navarra perinatal palliative care. Contact: Luis Chiva MD PhD, director of the department of obstetrics and gynecology. Navarra, Spain
UKRAINE
Слід Життя (Perinatal Hospice - Imprint of Life). Contact: Giustina Olha Holubets, geneticist, medical psychologist and consultant in clinical bioethics, tel. +38 (097) 096 18 04 and +38 (063) 273 67 68. Lviv, Ukraine
URUGUAY
Pereira Rossell Hospital Center perinatal palliative care program, Unidad de Cuidados Especialies y Paliativos Perinatales. Contact: Rita Rufo MD, coordinator of perinatal palliative care. Montevideo, Uruguay
WALES
Cardiff Children's Hospital Paediatric Palliative Care Network, including perinatal support. Contact: Linda Baker, tel: +44 29 2074 3373. Cardiff, Wales
If your organization provides formal or informal perinatal hospice support and you would like to be added to this list, please contact the editor of this site.
