Perinatal Hospice and Palliative Care
A Gift of Time
Resources for parents
In addition to A Gift of Time and our other books, more resources for
continuing your pregnancy with a life-limiting prenatal diagnosis:
FEATURED RESOURCES FOR PARENTS
Now I Lay Me Down to Sleep, a national network of professional photographers who volunteer to provide tender and tasteful remembrance photography of babies before or after death.
CaringBridge, free websites to keep family and friends informed about your baby.
BabyCenter message board, Carrying Pregnancy to Term Despite Poor or Fatal Prenatal Diagnosis
Carrying to Term Pages, including detailed tips for parents.
Web sites related to continuing a pregnancy:
A Baby's Legacy
Antenatal Results and Choices: Continuing a Pregnancy (U.K.)
BabyCenter message board, Carrying Pregnancy to Term Despite Poor or Fatal Prenatal Diagnosis
Be Not Afraid
Carrying to Term Pages
Carrying to Term discussion forum sponsored by Now I Lay Me Down to Sleep
HealthTalkOnline patient experiences about continuing a pregnancy, sponsored by the University of Oxford, England
Isaiah's Promise, an all-volunteer organization of parents who received a poor prenatal diagnosis and carried to term. Contact: Cubby LaHood or Nancy Mayer-Whittington, (301) 681-5784. Silver Spring, Maryland
Living with Trisomy 13 perinatal hospice information
MISS Foundation online support forums, "Fatal Diagnoses During the Prenatal Period" and "Pediatric Hospice Support"
MISS Foundation Perinatal Palliative CARES Facebook page (private group)
Prenatal Partners for Life
Pietá ministry for negative prenatal diagnosis
Prenatal Diagnosis Support Australia
Rowan Tree Foundation
Sufficient Grace Ministries
Waiting with Love
Antenatal Results and Choices: Continuing a Pregnancy (U.K.)
BabyCenter message board, Carrying Pregnancy to Term Despite Poor or Fatal Prenatal Diagnosis
Be Not Afraid
Carrying to Term Pages
Carrying to Term discussion forum sponsored by Now I Lay Me Down to Sleep
HealthTalkOnline patient experiences about continuing a pregnancy, sponsored by the University of Oxford, England
Isaiah's Promise, an all-volunteer organization of parents who received a poor prenatal diagnosis and carried to term. Contact: Cubby LaHood or Nancy Mayer-Whittington, (301) 681-5784. Silver Spring, Maryland
Living with Trisomy 13 perinatal hospice information
MISS Foundation online support forums, "Fatal Diagnoses During the Prenatal Period" and "Pediatric Hospice Support"
MISS Foundation Perinatal Palliative CARES Facebook page (private group)
Prenatal Partners for Life
Pietá ministry for negative prenatal diagnosis
Prenatal Diagnosis Support Australia
Rowan Tree Foundation
Sufficient Grace Ministries
Waiting with Love
Information about continuing pregnancies with specific conditions:
Anencephaly Information (also in German, French, Spanish, Dutch, Portuguese and Italian)
Limb-Body Wall Complex.net
MUMS National Parent-to-Parent Support Network
Poor Prenatal Diagnosis.com
Potter's Syndrome.org
S.O.F.T. Support Organization for Trisomy 18, 13, and related disorders (Trisomy 13/Patau Syndrome, Trisomy 18/Edwards Syndrome, triploidy, and others)
Trisomy 13 Support
Trisomy 18:
Limb-Body Wall Complex.net
MUMS National Parent-to-Parent Support Network
Poor Prenatal Diagnosis.com
Potter's Syndrome.org
S.O.F.T. Support Organization for Trisomy 18, 13, and related disorders (Trisomy 13/Patau Syndrome, Trisomy 18/Edwards Syndrome, triploidy, and others)
Trisomy 13 Support
Trisomy 18:
Trisomy 18 Foundation
Trisomy 18 Support
Online community for parents facing Trisomy 18
Facebook group for parents expecting a Trisomy 18 child
(See also the video "99 Balloons")
Perinatal bereavement:
Babyloss.com (U.K.)
Babies Remembered
Brief Encounters
Féileacáin, Stillbirth and Neonatal Death Association of Ireland
Gentle Birth (loss resources from a midwifery perspective)
Hygeia Foundation & Institute for Perinatal Loss and Bereavement
Infants Remembered in Silence
M.E.N.D. (Mommies Enduring Neonatal Death)
MISS Foundation
SANDS Stillbirth and Neonatal Death Society (Australia)
SANDS Stillbirth and Neonatal Death Society (England)
SHARE Pregnancy and Infant Loss Support
Perinatal bereavement photography:
Todd Hochberg Touching Souls: Healing with Bereavement Photography
Now I Lay Me Down to Sleep (national network of infant bereavement photographers)
End-of-life decisions:
Embracing Our Dying
Sources for purchasing books and other materials:
A Gift of Time is available from Johns Hopkins University Press, Amazon.com, Amazon.co.uk, and other booksellers.
Waiting with Gabriel is available from Loyola Press, Amazon.com, Amazon.co.uk, and other booksellers. The Italian translation is available from Edizioni San Paolo and Amazon.it.
A Place to Remember (books, birth/death announcements, baby books, sympathy cards, and other resources specifically for the loss of a baby)
Centering Corporation
Fulcrum Publishing
Gift of a Lifetime (booklet for parents briefly describing the choice of carrying to term; available from Focus on the Family)
Loyola Press
RTS Bereavement Services, including the brochure "Waiting for Birth and Death: Knowing Your Baby Will Not Survive" (also available in Spanish)
Other resources:
CaringBridge Free Web pages to keep family and friends informed about your baby.
Certificates of Birth Resulting in Stillbirth Legal documents available in some states for babies who are born still.
Crossings: Caring for Our Own at Death—A Home Funeral and Green Burial Resource Center. Information about caring for your baby's body and holding a vigil in your home.
Faith's Lodge in Webster, Wisconsin. A unique retreat for families who currently have a child with a serious illness or have suffered the recent loss of a child.
Olivia Raine Foundation Financial assistance for funeral-related expenses for infants.
Trappist Caskets Monks from New Melleray Abbey in Iowa build infant-sized caskets out of sustainable red oak harvested from the abbey's forest.
CaringBridge Free Web pages to keep family and friends informed about your baby.
Certificates of Birth Resulting in Stillbirth Legal documents available in some states for babies who are born still.
Crossings: Caring for Our Own at Death—A Home Funeral and Green Burial Resource Center. Information about caring for your baby's body and holding a vigil in your home.
Faith's Lodge in Webster, Wisconsin. A unique retreat for families who currently have a child with a serious illness or have suffered the recent loss of a child.
Olivia Raine Foundation Financial assistance for funeral-related expenses for infants.
Trappist Caskets Monks from New Melleray Abbey in Iowa build infant-sized caskets out of sustainable red oak harvested from the abbey's forest.
(Note: We cannot guarantee the quality of these websites or their services and products, and we ask that you make your own decisions about what is helpful to you.)