Resources for parents

In addition to our books, more resources for continuing your pregnancy with a terminal prenatal diagnosis:

Web sites related to continuing a pregnancy:

Antenatal Results and Choices: Continuing a Pregnancy (U.K.)

BabyCenter discussion forum, Carrying to Term Despite Fatal Prenatal Diagnosis

Be Not Afraid

Carrying to Term Pages

Carrying to Term discussion forum sponsored by Now I Lay Me Down to Sleep

HealthTalkOnline patient experiences about continuing a pregnancy, sponsored by the University of Oxford, England

Living with Trisomy 13 perinatal hospice information

MISS Foundation online support forums, "Fatal Diagnoses During the Prenatal Period" and "Pediatric Hospice Support"

Mother's Heart Ministry

Prenatal Partners for Life

Pietá ministry for negative prenatal diagnosis

Rowan Tree Foundation

Sufficient Grace Ministries

Waiting with Love

Information about continuing pregnancies with specific conditions:

Anencephaly Information (also in German, French, Spanish, Dutch, Portuguese and Italian)

MUMS National Parent-to-Parent Support Network

Poor Prenatal Diagnosis.com

Potter's Syndrome.org

S.O.F.T. Support Organization for Trisomy 18, 13, and related disorders (Trisomy 13/Patau Syndrome, Trisomy 18/Edwards Syndrome, triploidy, and others)

Trisomy 13 Support

Trisomy 18 Support (See also the video "99 Balloons")

Perinatal bereavement:

Babyloss.com (U.K.)

Babies Remembered

Brief Encounters

Born Still but Still Born

Gentle Birth (loss resources from a midwifery perspective)

Hygeia Foundation & Institute for Perinatal Loss and Bereavement

Infants Remembered in Silence

M.E.N.D. (Mommies Enduring Neonatal Death)

MISS Foundation

Pregnancy and Infant Loss.org

SANDS Stillbirth and Neonatal Death Society (Australia)

SANDS Stillbirth and Neonatal Death Society (England)

SHARE Pregnancy and Infant Loss Support

Perinatal bereavement photography:

Todd Hochberg Touching Souls: Healing with Bereavement Photography

Now I Lay Me Down to Sleep (national network of infant bereavement photographers)

End-of-life decisions:

Embracing Our Dying

Sources for purchasing books and other materials:

A Place to Remember

Centering Corporation

Fulcrum Publishing

Loyola Press

RTS Bereavement Services, including the patient brochure "Waiting for Birth and Death: Knowing Your Baby Will Not Survive."

Other resources:

CaringBridge Free Web pages to keep family and friends informed about your baby.

Certificates of Birth Resulting in Stillbirth Legal documents available in some states for babies who are born still.

Crossings: Caring for Our Own at Death—A Home Funeral and Green Burial Resource Center. Information about caring for your baby's body and holding a vigil in your home.

Faith's Lodge in Webster, Wisconsin. A unique retreat for families who currently have a child with a serious illness or have suffered the recent loss of a child.

Olivia Raine Foundation Financial assistance for funeral-related expenses for infants.

Trappist Caskets Monks from New Melleray Abbey in Iowa build infant-sized caskets out of sustainable red oak harvested from the abbey's forest.

(Note: Perinatal Hospice.org cannot guarantee the quality of these Web sites or their services and products, and we ask that you make your own decisions about what is helpful to you.)