|
Perinatal hospice/palliative care programs and support
As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
A perinatal hospice approach walks with
these families on their journey through pregnancy, birth and death,
honoring the baby as well as the baby's family. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see our resources pages).
Because the concept of perinatal hospice is relatively new, programs may vary in their scope of support and services. Many of the programs listed below are hospital- or clinic-based, some are hospice-based, and a few are faith-based or independent.
ARIZONA
MISS Foundation C.A.R.E. - Comfort and Resource Enhancement for Families Facing Fatal Birth Conditions. Contact: Program director Dana Southworth MSW LPN, (602) 472-2057.
CALIFORNIA
Angel Babies/Bebitos Angelitos of Hinds Hospice, Fresno and Merced, California
Compass Care Pediatric and Perinatal Palliative Care Program, University of California San Francisco Medical Center. Contact: Tina Ratto RN MSN, (415) 353-1328.
Haven Hospice, Signal Hill, California
St. Joseph Health System Perinatal Comfort Care, Orange, California
San Diego Hospice and The Institute for Palliative Medicine perinatal hospice program, San Diego, California
Skye's Angels Perinatal Hospice, Hospice of the East Bay, Pleasant Hill, California
TrinityCare Hospice TrinityKids Care. Contact director Gay Walker, (310) 530-3800. Los Angeles, California
COLORADO
Fetal Concerns Program of the Colorado High
Risk Maternity and Newborn Program, a collaborative program of the
Department of Neonatology at The Children's Hospital and the Departments of Obstetrics and Gynecology and Women’s and Infants' Services at the University of Colorado Hospital. Contact Fetal Concerns Coordinator Nancy English PhD RN, (720) 777-8826. Denver, Colorado
The Denver Hospice. Contact: Krista Newton, LCSW, (303) 388-7949 x1235. Denver, Colorado
Hospice del Valle. Contact: Lois Booth RN, (719) 589-9019. Alamosa, Colorado
String of Pearls, Denver, Colorado
FLORIDA
Community PedsCare, pediatric and perinatal palliative and hospice care, a program of Community Hospice of Northeast Florida in collaboration with Wolfson Children's Hospital, Nemours Children's Clinic and the University of Florida. Contact: program manager Terry Eason, (904) 407-6302, Jacksonville, Florida
Perinatal Hospice and Palliative Care at The Hospice of the Florida Suncoast. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida
GEORGIA
Hospice Atlanta Perinatal Palliative Care Program, (404) 869-3000. Atlanta, Georgia
Hospice of Northeast Georgia Medical Center perinatal program, (770) 533-8888. Gainesville, Georgia
Northside Hospital Perinatal Loss Office, Perinatal Palliative Care, Atlanta, Georgia
ILLINOIS
Advocate Lutheran General Hospital, Women's & Children's Services palliative and bereavement prorgrams. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois
BJC Hospice Perinatal Program, Alton, Illinois
The Haven Network for Perinatal Death and Bereavement, (Christian-based support), Rockford, Illinois
Rush University Medical Center Fetal &
Neonatal Medicine Program. Contact: Maria Reyes RNC MSN, (312)
942-7874. Chicago, Illinois
Karla Polaschek MD, Medical Arts Ltd., (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)
INDIANA
Pathways at Clarian Health Partners, (317) 962-8135, Indianapolis, Indiana
The Center for Perinatal Loss perinatal hospice services, St. Vincent Women's Hospital, Indianapolis, Indiana
IOWA
Perinatal Hospice of Iowa, a multidisciplinary team approach at Mercy Medical
Center. Contact: Bereavement and perinatal hospice coordinator Ann Valdez, Mercy Birthing Center, (515) 358-3030. Des Moines, Iowa
Women's Choice Center. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)
KANSAS
Choices Medical Clinic, Wichita, Kansas
KENTUCKY
Bridges of Love, Central Baptist Hospital Perinatal Palliative Care Program. Contact: Perinatal Bereavement Coordinator Deborah Mueller RN BSN, (859) 260-6904. Lexington, Kentucky
MARYLAND
Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland MASSACHUSETTS
Hospice of the North Shore. Contact: Maureen Forbes MS CCLS, (978)750-9335. Danvers, Massachusetts
Visiting Nurse Association & Hospice of Northern Berkshire. Contact: Janet McClelland, (413) 664-4536. North Adams, Massachusetts
Home Health VNA/Merrimack Valley Hospice, (800) 475-8335 or (978) 552-4122.
Lawrence, Massachusetts
MICHIGAN
Angela Hospice Prenatal Program, Livonia, Michigan
Henry Ford Kaleidoscope Kids Hospice, Detroit, Michigan
Hospice of Michigan Perinatal and Pediatric Early Care Program. Contact Pediatric Programs Director Mary Spicketts RN, BSN, CHPN, (800) 642-4021. Grand Rapids, Michigan
Perinatal Hospice of Washtenaw. Contact: director Janet Holtz, (734)395-0400. Ann Arbor, Michigan
MINNESOTA
Abbott Northwestern Hospital, Birth Center Case Management Specialists, (612) 863-7585. Minneapolis, Minnesota
Birth Center, United Hospital. Birth planning in special situations (pdf). Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota
Deeya
(a Sanskrit word meaning "a small light"), a joint program of
Children's Hospitals and Clinics in Minneapolis and St. Paul, Abbott
Northwestern Hospital in Minneapolis and United Hospital in St. Paul,
Minnesota
Lakewood Health System Perinatal Hospice, (218) 894-8080 or (800) 525-1033. Staples, Minnesota
MISSOURI
Alexandra's House, Kansas City, Missouri
BJC Hospice Perinatal Program in St. Louis, Sullivan, and Farmington, Missouri. See their video on YouTube
FOOTPRINTS, Cardinal Glennon Children's Medical Center, St. Louis, Missouri
Kansas City Hospice and Palliative Care Carousel Program prenatal services, Kansas City, Missouri
Wings perinatal hospice program, Children's Hospital, St. Louis, Missouri
NEBRASKA
Perinatal Comfort Care Program, Methodist Hospital. Contact: perinatal comfort care liaison Nina Mohr BSN RN, 402-354-3488, or clinical nurse educator Mary Killpack MSN RN, 402-354-5634. Omaha, Nebraska NEW JERSEY
Circle of Life Children's Center. Contact: Director of Program Services Sheila Walsh APRN BC, (973) 972-1743. Newark, New Jersey
Valley Health System Butterflies Program, Paramus, New Jersey
NEW YORK
Caring Hearts Perinatal Program, Hospice Buffalo. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York
Hospice Care Network, Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York
Maggie Rose Perinatal Bereavement Program, Hospice Care in Westchester and Putnam, (914) 666-4228. Tarrytown, New York
Perinatal Hospice Center, St. Vincent's Hospital, Greenwich Village. Contact: Director of neonatology Mary-Joan Marron-Corwin MD. (212) 604-7862. New York City
Neonatologist Elvira Parravicini MD, New York-Presbyterian/Columbia University Medical Center. New York, New York
NORTH CAROLINA
Be Not Afraid, a program of the Elizabeth Ministry of the Catholic Diocese of Charlotte. Provides resources and connects parents carrying to term with those who have done so previously. Contact: Sandy Buck, (704) 948-4587 or Tracy Winsor, (704) 543-4780, or by e-mail. Charlotte, North Carolina
Kids Path Perinatal Hospice Services, Hospice and Palliative Care of Greensboro, North Carolina
University of North Carolina Center for Maternal and Fetal Health, Chapel Hill, North Carolina
OHIO
Cincinnati Children's Hospital Medical Center/StarShine Hospice, Cincinnati, Ohio
Cleveland Clinic Fetal Care Center. Contact: Donna Patno CNM DNP, 1-866-864-0430. Cleveland, Ohio
Hospice of the Western Reserve Perinatal Care Program, Cleveland, Ohio
Journey of Hope Perinatal Hospice, Miami Valley Women's Center. Contact: Nancy Jensen RN, (937) 298-9998, Dayton, Ohio
Perinatal palliative care, The Toledo Hospital/Toledo Children's Hospital, ProMedica Health System. Contact: social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio
PENNSYLVANIA
Lancaster General Women and Babies Hospital. Contact: Staff Chaplain Carolanne B. Hauck, 717-544-3418.
SOUTH CAROLINA
Carolina Perinatal Support Network, Greenville, South Carolina
Lowcountry Perinatal Support, North Charleston, South Carolina
SOUTH DAKOTA
Avera McKennan Palliative Care Service, Avera McKennan Hospital. Contact: Medical director Joann Bennett DO FACOI, Nancy Terveen NP (605) 322-8993; Michele Snyders MSW, Anna Perry MSW, (605) 322-8273. Sioux Falls, South Dakota
Perinatal palliative care program, Sanford Children's Hospital. Contact: Larry Fenton MD or Pam Koepsell RN, (605) 312-1062. Sioux Falls, South Dakota
TENNESSEE
Alive Hospice Monarchs perinatal program, Nashville, Tennessee
Hospice of Chattanooga Perinatal Hospice, Chattanooga, Tennessee
TEXAS
The Fetal Center at Texas Children's Hospital/Baylor College of Medicine. Contact: Fetal intervention coordinator Karen Moise RN, (713) 798-8621. Houston, Texas
West Texas Maternal Fetal Medicine Center. Contact: Jamie Chase MS CGC. Odessa, Texas
UTAH
Angel Watch, Intermountain Health Care. Contact: Carolyn Kasteler RN, (801) 698-4486. Salt Lake City, Utah
Rainbow Kids Palliative Care Program, Primary Children's Medical Center/University of Utah. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah
VIRGINIA
Family Birth Place at Mary Washington Hospital. Contact: Perinatal bereavement coordinator Tammy Ruiz RN, (540) 741-3268. Fredericksburg, Virginia
Perinatal Concerns Program, Inova Fairfax Hospital. Contact: Kelly Vergot RN, (703) 776-6103. Falls Church, Virginia
Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia
WASHINGTON
Lavender Tree, Care Net of Pierce County, (253) 770-8697 or e-mail. Puyallup, Washington
Sacred Heart Women's Health Center's Forget-Me-Not program, Spokane, Washington
Stepping Stones Perinatal Program, Providence Health System's Hospice of Seattle, Washington
WISCONSIN
Gundersen Lutheran Palliative Care. Contact: Waneeta Everson, BSN RN, (608) 775-3796. LaCrosse, Wisconsin
International
CANADA
Pediatric Palliative Care Program, Child Health Program, Capital Health. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), or e-mail Dawn Davies MD or Tara Wren. Edmonton, Alberta
Pediatric Palliative and Bereavement Care Service, University of Toronto Hospital for Sick Children. Contact: Palliative care and bereavement coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario
Canuck Place Children’s Hospice offers comprehensive pediatric palliative care and hospice support, including perinatal. E-mail or phone: (604) 731-4847. Vancouver, British Columbia
Roger's House, The Children's Hospital of Eastern Ontario. Ottawa, Ontario
ITALY
La Quercia Millenaria, Rome
FRANCE
Soins Palliatifs en Maternité (Association SPAMA)
POLAND
Warsaw Hospice for Children and Perinatal Ultrasound Clinic, Warsaw
UNITED KINGDOM
The Rosie Hospital, Addenbrooke's Hospital, Cambridge University Hospitals NHS Foundation Trust, Cambridge, England
The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.
If your organization provides formal or informal perinatal hospice support
and you would like to be added to this list, please contact us.
|
