Perinatal hospice/palliative care programs and support

Arkansas Fetal Diagnosis and Management, a collaborative program of the University of Arkansas for Medical Sciences and Arkansas Children's Hospital. Contact: Lori Gardner RN, (866) 273-3835. Little Rock, Arkansas

MISS Perinatal Palliative CARES Program. Contact: (602) 279-MISS (6477) or (888) 455-MISS (6477)

EMBRACE Palliative Care Foundation. Contact: Berdette Carrasco RNC or Dana Southworth LMSW, (623) 330-4963 or email.

To Lose a Child (TLC) perinatal palliative care program, Northern Arizona Healthcare (Flagstaff Medical Center & Verde Valley Medical Center). Contact: Perinatal educator Lynn Harris RN BSN or Renee Hamilton, (928) 214-2731. Flagstaff, Arizona

Angel Babies/Bebitos Angelitos of Hinds Hospice, Fresno and Merced, California

Compass Care Pediatric and Perinatal Palliative Care Program, University of California San Francisco Medical Center. Contact: Tina Ratto RN MSN, (415) 353-7558.

Haven Hospice, Signal Hill, California

Perinatal Hospice Services, Life Choices Pregnancy Clinic of the Ojai Valley. Ojai, California

St. Joseph Health System Perinatal Comfort Care, Orange, California

San Diego Hospice and The Institute for Palliative Medicine perinatal program, (619) 688-1600. San Diego, California

Skye's Angels Perinatal Hospice, Hospice of the East Bay, Pleasant Hill, California

TrinityCare Hospice TrinityKids Care. Contact director Gay Walker, (310) 530-3800. Los Angeles, California

Embrace the Journey perinatal support, Walk to Remember Inland Empire, (909) 235-WALK. Riverside/San Bernardino/Ontario, California

Hospice del Valle. Contact: Lois Booth RN, (719) 589-9019. Alamosa, Colorado

String of Pearls, Denver, Colorado

Perinatal Hospice Program, Regional Hospice and Homecare of Western Connecticut. Contact: Coordinator Chris Mastropietro RN, (203) 702-7400. Danbury, Connecticut

IMPACT (Infant, Maternal, Pediatric Advanced Care Team) perinatal palliative care, Christiana Care Health Systems. Contact: Office of Neonatology, (302) 733-2410. Newark, Delaware

Community PedsCare perinatal program, a program of Community Hospice of Northeast Florida in collaboration with Wolfson Children's Hospital, Nemours Children's Clinic and the University of Florida. Contact: Director Terry Eason, (904) 407-6302, Jacksonville, Florida

Perinatal ComfortCare of Tampa, Life Impact Network. Contact: Kathy DeSanto RN, (813) 931-1804 ext. 211. Tampa, Florida

Suncoast Hospice perinatal loss program. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida

The Mending Tree at Circle of Love Center, Chapters Health System. Contact: Jacqueline Warner Garman, LCSW, ACHP-SW, (813) 357-5671. Tampa, Florida

Hospice Atlanta Children's Hospice Program, including care before birth. (404) 869-3000. Atlanta, Georgia

Hospice of Northeast Georgia Medical Center perinatal program, (770) 533-8888. Gainesville, Georgia

H.E.A.R.T.strings Perinatal Palliative Care, Northside Hospital Perinatal Loss Office, Atlanta, Georgia

Sound Journeys Perinatal Hospice. Columbus, Georgia

Butterfly's Embrace, a perinatal palliative care service of St. Luke's Health System labor and delivery unit. Contact: Jennifer Jonely RN, (208) 381-2651. Boise, Idaho

Daniel's Gift supportive counseling services, St. Luke's Health System Fetal Medicine Program. Contact: Coordinator Jacque Brown RN, (208) 410-9174. Twin Falls, Idaho

Advocate Lutheran General Hospital Perinatal Palliative Care Program. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois

BJC Hospice Perinatal Program, Alton, Illinois (see also listings in Missouri)

The Haven Network: Northern Illinois' Perinatal Hospice and Bereavement Center. Rockford, Illinois

Rush University Medical Center Fetal & Neonatal Medicine Program. Contact: Maria Reyes RNC MSN, (312) 942-7874. Chicago, Illinois

Karla Polaschek MD, Medical Arts Ltd., (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)

St. Alexius Medical Center Perinatal Palliative Care. Contact: Kristi Moran MSW, (847) 303-7946. Hoffman Estates, Illinois

Code Noah perinatal hospice, Community Health Network, Indianapolis

Hand in Hand Perinatal Palliative Care, The Women's Hospital, (812) 842-4200. Newburgh, Indiana

Pathways perinatal loss/bereavement programs, Riley Hospital for Children Perinatal-Fetal Center, Indiana University (IU) Health, (317) 962-8153, Indianapolis

Perinatal Care, St. Vincent Indianapolis Hospital, Indianapolis

Mercy Perinatal Hospice, Mercy Medical Center. Contact: Bereavement and perinatal hospice coordinator Ann Valdez BSN RNC, Mercy Birthing Center, (515) 358-3030. Des Moines, Iowa

The SHINE Program: Perinatal and Pediatric Palliative Care, Blank Children’s Hospital, UnityPoint Health. Contact: (515) 241-5750. Des Moines, Iowa

Women's Choice Center. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)

Choices Medical Clinic, (316) 687-2792. Wichita, Kansas

See also Kansas City Hospice and Palliative Care Carousel Perinatal Services, Kansas City, Missouri

Bridges of Love, Baptist Health Lexington Perinatal Palliative Care Program. Contact: Perinatal bereavement coordinator Deborah Mueller RN BSN, (859) 260-6904. Lexington, Kentucky

Perinatal Palliative Care Hospice Program, Hospice of Baton Rouge, (225) 767-4673. Baton Rouge, Louisiana

Dr. Bob's Place, a comprehensive pediatric palliative care and hospice program that also offers prenatal support. Contact: Neonatal nurse practitioner Jenny Dukes MSN CRNP, (410) 523-1414. Baltimore, Maryland

Gilchrist Kids Perinatal Hospice and Palliative Care, Gilchrist Hospice Care, an affiliate of Greater Baltimore Medical Center. Contact: Program manager Briana Shirey, (443) 849-8200. Hunt Valley, Maryland

Chesapeake Kids Perinatal and Infant Loss Support Program, Hospice of the Chesapeake. Contact: Sarah Montgomery LCSW-C, The Life Center, (410) 987-2129. Annapolis and Landover, Maryland

Isaiah's Promise, an all-volunteer organization of parents who received a poor prenatal diagnosis and carried to term. Contact: Cubby LaHood or Nancy Mayer-Whittington, (301) 681-5784. Silver Spring, Maryland

Never Alone Perinatal Palliative Care Program, Holy Cross Hospitall. Contact: Perinatal services coordinator Bethany Fox, (301) 754-7672. Silver Spring, Maryland

Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland

Baystate VNA and Hospice perinatal support, provided through the Massachusetts Pediatric Palliative Care Network. Springfield, Massachusetts

Brigham and Women's Hospital Perinatal Palliative Care Program. Contact: Neonatologist Jennifer Cohen MD MMSc, (617) 732-8405. Boston, Massachusetts

Cranberry Hospice Fragile Footprints Pediatric Palliative Care. Contact: Administrator Deborah Dolaway, LICSW, (508) 746-0215. Plymouth, Massachusetts

Estrella's Program perinatal hospice, PediPathways, Inc. pediatric hospice and palliative care agency serving the greater Boston area. Contact: Social services manager Elissa Bosley LCSW, (617) 774-1351. North Quincy, Massachusetts

Hospice of the North Shore. Contact: Maureen Forbes MS CCLS, (978) 750-9335. Danvers, Massachusetts

Tufts Medical Center, Center for Perinatal Palliative Care. Contact: Director Linda Kleeman MD, (617) 636-8176. Boston, Massachusetts

Visiting Nurse Association & Hospice of Northern Berkshire. Contact: Janet McClelland, (413) 664-4536. North Adams, Massachusetts

Home Health VNA/Merrimack Valley Hospice, (800) 475-8335 or (978) 552-4122. Lawrence, Massachusetts

Angela Hospice Prenatal Program, Livonia, Michigan

Kaleidoscope Kids, Hospices of Henry Ford Health System, Detroit, Michigan

Hospice of Michigan Perinatal Program. Contact Pediatric Programs Director Mary Spicketts RN, BSN, CHPN, (800) 642-4021. Grand Rapids, Michigan

Perinatal Hospice and Tender Care of Washtenaw County. Contact: director Janet Holtz, (734)395-0400. Ann Arbor, Michigan

Abbott Northwestern Hospital, Birth Center Case Management Specialists, (612) 863-7585. Minneapolis, Minnesota

Birth Center, United Hospital. Birth planning in special situations (pdf). Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota

Deeya (a Sanskrit word meaning "a small light") perinatal hospice, a joint program of Children's Hospitals and Clinics in Minneapolis and St. Paul, Abbott Northwestern Hospital in Minneapolis, and United Hospital in St. Paul, Minnesota

Lakewood Health System Perinatal Hospice, (218) 894-8080 or (800) 525-1033. Staples, Minnesota

Minnesota Birth Center, a home-like, freestanding birth center staffed by certified nurse-midwives and registered nurses. Medical director: Steven E. Calvin MD, perinatologist. (612) 545-5311. Minneapolis, Minnesota

Alexandra's House, Kansas City, Missouri

BJC Hospice Perinatal Program in St. Louis, Sullivan, and Farmington, Missouri; also in Illinois. See their video on YouTube

1st Breath perinatal hospice support. Kansas City, Missouri

Footprints, Cardinal Glennon Children's Medical Center, St. Louis, Missouri

Kansas City Hospice and Palliative Care Carousel Program prenatal services, Kansas City, Missouri

The Fetal Care Center perinatal hospice program, Children's Hospital, Barnes Jewish Hospital, Washington University physicians. St. Louis, Missouri

Perinatal Palliative Care, Billings Clinic. Contact: Diane Arkava LCSW, (406) 247-6344. Billings, Montana

Be Not Afraid-Omaha, Elizabeth Ministry, Archdiocese of Omaha. Contact: (402) 551-9003, ext. 1323. Omaha, Nebraska

Perinatal Comfort Care Program, Methodist Women's Hospital. Contact: perinatal comfort care liaison Nina Mohr BSN RN (402) 354-3488, or clinical nurse educator Mary Killpack MSN RN, (402) 354-5634. Omaha, Nebraska

Perinatal Hospice, Alegent Health System, Bergan Mercy Medical Center. Contact: Coordinator Nancy Kadavy MSN APRN, (402) 398-6014. Omaha, Nebraska

Saint Elizabeth Regional Medical Center EMBRACE Perinatal Palliative Care and Hospice Program. Contact: EMBRACE coordinator, (402) 219-7065. Lincoln, Nebraska

Circle of Life Children's Center. Contact: Director of Program Services Sheila Walsh APRN BC, (973) 972-1743. Newark, New Jersey

Valley Health System Butterflies Program. Contact: Coordinator Mary Ann West RN MSN CHPN, (201) 291-6335. Paramus, New Jersey

A TIME, a Jewish support organization for those experiencing pregnancy loss and infertility. Contact: Malkie Klaristenfeld, director of services for pregnancy loss, (718) 686-8912. New York, New York

CareFirst Perinatal Palliative Care (formerly Southern Tier Hospice and Palliative Care), Corning, New York

Caring Hearts Perinatal Program, Hospice Buffalo. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York

CHOICES Pediatric Palliative Care Program, SUNY Upstate Medical University. Contact: Irene Cherrick MD, (315) 243-7826. Syracuse, New York

Circle of Hope Perinatal Bereavement Program, Hospice Care in Westchester and Putnam. Contact: Maribel Nazario, (914) 666-4228, ext. 336. Tarrytown, New York

Footprints on the Heart, Sisters of Charity Hospital. Contact: Nurse coordinator Fran Kane, (716) 862-1678. Buffalo, New York

Hospice Care Network Perinatal Support. Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York

Maggie Rose Perinatal Bereavement Program, Bereavement Center of Westchester. Contact: Patty Donovan-Duff, (914) 961-2818, ext. 305. Tuckahoe, New York

Neonatologist Elvira Parravicini MD, New York-Presbyterian/Columbia University Medical Center. New York, New York

Asheville Doula Services. Support from a certified birth and postpartum doula with specialized training in perinatal loss. Asheville, North Carolina

Be Not Afraid Ministry of Charlotte, a network of parents and professionals. Contact: Sandy Buck, (704) 948-4587 or Tracy Winsor, (704) 543-4780, or by e-mail. Charlotte, North Carolina

Perinatal ComfortCare of North Carolina, Charlotte, providing support services guided by OB nurses experienced in perinatal bereavement. Contact: CEO and founder Tammy Tate, (864) 419-4519.

Kids Path Perinatal Hospice, Hospice and Palliative Care of Greensboro, North Carolina

University of North Carolina Center for Maternal and Fetal Health perinatal hospice team, Chapel Hill, North Carolina

Caring Hearts Perinatal Program, Essentia Health. Fargo, North Dakota

Cincinnati Children's Hospital Medical Center StarShine Perinatal Hospice, Cincinnati, Ohio

Cleveland Clinic Fetal Care Center. Contact: Donna Patno CNM DNP, (866) 864-0430. Cleveland, Ohio

Hospice of the Western Reserve Perinatal Care Program, Cleveland, Ohio

Journey of Hope Perinatal Hospice, Miami Valley Women's Center. Contact: Nancy Jensen RN, (937) 298-9998, Dayton, Ohio

Maternal-Child/Pediatric Palliative Care (MACPAC) at Mercy Children's Hospital and Mercy St. Vincent. Contact: Angie Westenkirchner RN, maternal-fetal medicine high-risk patient navigator, (419) 251-8065. Toledo, Ohio

Nationwide Children's Hospital Homecare perinatal hospice care. Columbus, Ohio

Perinatal palliative care, The Toledo Hospital/Toledo Children's Hospital, ProMedica Health System. Contact: social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio

Rainbow Babies & Children's Hospital Pediatric Palliative Care Center. Contact: Ann Marie Dragon RN BSN MBA, clinical coordinator, (216) 286-4215. Cleveland, Ohio

Sufficient Grace Ministries Perinatal Hospice and Bereavement Services, providing in-person and online support. Contact: Kelly Gerken, (419) 722-6978. Deshler, Ohio

Center for Fetal Diagnosis and Treatment Perinatal Palliative Care Initiative, Children's Hospital of Philadelphia

Lancaster General Health. Contact: Staff Chaplain Carolanne B. Hauck, 717-544-3418. Lancaster, Pennsylvania

Perinatal ComfortCare of South Carolina, Greenville, providing support services guided by OB nurses experienced in perinatal bereavement. Contact: CEO and founder Tammy Tate, (864) 419-4519. Greenville, South Carolina

Embracing the Journey Lowcountry Perinatal Support , North Charleston, South Carolina

Alive Hospice Monarchs perinatal program, Nashville, Tennessee

Hospice of Chattanooga Perinatal Crogram, Chattanooga, Tennessee

Cook Children's Medical Center. Contact: NICU director Barbara Greer, palliative care medical director Todd Pearson MD, or neonatologist and palliative care specialist Terri Weinman MD, (682) 885-4285. Fort Worth, Texas

Houston Hospice Butterfly Program perinatal hospice, Houston, Texas

Journey of Hope/Viaje de Esperanza, University of Texas Health Science Center at San Antonio. Contact: Peggy Humm MSN RN, (210) 843-4719. San Antonio, Texas

Kinder Hope Perinatal Hospice Care, Hope Hospice, (830) 625-7525 or (800) 499-7501. New Braunfels, Texas

Love's Legacy Perinatal Hospice Support Care, Burleson Pregnancy Aid Center. Contact: Nurse manager Penny Leone RN, (817) 295-4101 or (817) 932-5488. Burleson, Texas

Medical City Children's Hospital Advanced Maternal and Newborn Institute. Contact: Michelle Jones RN, (972) 566-8585. Dallas, Texas

Texas Fetal Center, University of Texas Health Science Center, Children's Memorial Hermann Hospital. Contact: Karen Moise RN, Fetal Center Clinical Coordinator, (832) 325-7288, or Kim Cole RNC NNP-BC or Kristie Cullum RN BSN CHPN, (713) 704-0495. Houston, Texas

Pediatric and Perinatal/Neonatal Palliative Program of the Permian Basin,
West Texas Maternal Fetal Medicine Center. Contact: Jamie Chase MS CGC. Odessa, Texas

University of Texas Medical Branch Perinatal Hospice and Palliative Care. Galveston, Texas
 

Angel Watch, Intermountain Health Care. Contact: Carolyn Kasteler RN, (801) 698-4486.  Salt Lake City, Utah

Rainbow Kids Palliative Care Program, Primary Children's Medical Center/University of Utah. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah 

Edmarc Hospice for Children perinatal hospice. Contact: (757) 967-9251. Portsmouth, Virginia

Family Birth Place at Mary Washington Hospital. Contact: Perinatal bereavement coordinator Tammy Ruiz RN, (540) 741-3268. See also her video about perinatal hospice. Fredericksburg, Virginia

Noah's Children perinatal care, St. Mary's Hospital. Richmond, Virginia

Perinatal Concerns Program, Inova Fairfax Hospital. Contact: Kelly Gallo RN, (703) 776-6371. Falls Church, Virginia

Perinatal Palliative Care Program, St. Francis Medical Center. Contact: Perinatal bereavement coordinator Michelle Henderson RNC-OB, CCL, (804) 594-3250, (804) 594-3291. Midlothian, Virginia

Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia

Lavender Tree , Care Net of Pierce County, (253) 770-8697 or e-mail. Puyallup, Washington

Forget-Me-Not Perinatal Palliative Care, Sacred Heart Women's Health Center. Spokane, Washington

Stepping Stones Perinatal Program, Providence Health System's Hospice of Seattle, Washington
 

Byron C. Calhoun MD FACOG FACS MBA, professor and vice chair, Maternal-Fetal Medicine Division, West Virginia University-Charleston, (304) 388-1599. Charleston, West Virginia

Gundersen Lutheran Palliative Care. Contact: Bereavement specialist Jill Wilke BSN RN (608) 775-3796 or (800) 362-9567 ext. 53796. La Crosse, Wisconsin

Perinatal CARE Program, Affinity Health System. Contact: Coordinator Thea Johnson MS, (920)-831-1284. Appleton, Wisconsin

Meriter Hospital Perinatal Palliative Care. Madison, Wisconsin

Perinatal Palliative Care, sponsored by Catholic Health Australia, Mater Health, Mercy Health, and Calvary Health Care, with 13 hospital and clinic locations in Adelaide, Brisbane, Canberra, Hobart, Launceston, Mackay, Melbourne, North Queensland, and Wagga Wagga.

Pediatric Palliative Care Program, Child Health Program, Capital Health. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), or e-mail Dawn Davies MD or Tara Wren. Edmonton, Alberta

Pediatric Palliative and Bereavement Care Service, University of Toronto Hospital for Sick Children. Contact: Palliative care and bereavement coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario

Canuck Place Children’s Hospice offers comprehensive pediatric palliative care and hospice support, including perinatal. E-mail or phone: (604) 731-4847. Vancouver, British Columbia 

London Health Sciences Centre Perinatal Hospice. Contact: Genetic counsellor Stephanie Ho, Medical Genetics Program, (519) 685-8500, ext. 52428. London, Ontario

Roger's House, The Children's Hospital of Eastern Ontario. Ottawa, Ontario

Soins Palliatifs en Maternité (Association SPAMA). See also the book Un enfant pour l'éternité by Isabelle de Mézerac, also available in Spanish and Portuguese.

Parents Helping Parents: Continuing a pregnancy after a prenatal diagnosis. Bruck, Germany

A Little Lifetime Foundation, providing support to bereaved parents including those with prenatal diagnoses. Dublin

La Quercia Millenaria, in association with Gemelli Hospital in Rome. See also the books Aspettando Gabriel by Amy Kuebelbeck; Il figlio terminale by Dr. Giuseppe Noia and Sabrina Pietrangeli Paluzzi;, and La terapia dell’accoglienza by Dr. Giuseppe Noia, Sabrina Pietrangeli Paluzzi, Carlo Casini, Dr. Carlo Bellieni, Silvestro Paluzzi, Dr. Mario Castorina, Carlo Paluzzi, and Massimo Losito.

SANDS (formerly Stillbirth and Neonatal Death Support), Wanganui

Centro de Coordinación Para El Acompañimiento de Madres con un Hijo/a Terminal, Associación de Médicos Catolicos, Humanae Vitae. Contact: Dr. Walter Zamora Palma, Dr. Rafael Diaz Salazar, Dr. Juan Herrera Salazar, tel. 2270 3359, 2278 1169. Managua, Nicaragua

Hospice i mors liv—A virtual "hospice in the womb" that offers guidance and peer support, throughout the pregnancy and after. Contact: Dr. Siri Fuglem Berg, tel. +47 90 70 10 11. Gjovik, Norway

Hospice i mors liv (hospice in the womb), "Yes for palliative units and care for children in Norway" (an advocacy organization). Kristiansand, Norway

Fundación Juan Pablito, "la vida compatible con el amor." Asunción, Paraguay

Hospicyjna Opieka Perinatalna (Perinatal Hospice Care), Fr. Dutkiewicz Hospice, Hospice Foundation. Gdansk, Poland

Warsaw Hospice for Children and Perinatal Ultrasound Clinic, Warsaw

HSJD Hospice Perinatal Program, Hospital Sant Joan de Déu. Contact: Dr. Ana Martín Ancel, Department of Neonatology. Barcelona, Spain

The Rosie Hospital, Addenbrooke's Hospital, Cambridge University Hospitals NHS Foundation Trust, Cambridge, England

The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.

If your organization provides formal or informal perinatal hospice support
and you would like to be added to this list, please contact us.