Perinatal Hospice and Palliative Care
A Gift of Time

Perinatal hospice/palliative care programs and support


As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, more than 225 pioneering hospitals, hospices, and clinics in the U.S. and around the world are now providing perinatal hospice/palliative care support for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.

A perinatal hospice approach walks with these families on their journey through pregnancy, birth, and death, honoring the baby as well as the baby's family. Perinatal hospice is not a place; it is a way of caring for the pregnant mother, the baby, the father, and all involved with dignity and compassion and love. It can easily be incorporated into standard pregnancy and birth care just about anywhere. Even in areas without a formal program, parents can create a loving experience for themselves and their baby, and health professionals and family and friends can offer support in the spirit of hospice (see A Gift of Time and the resources for parents and caregivers on this site).



    


Programs and groups listed below may vary in their scope of support and services. Many of the programs listed below are hospital- or clinic-based, some are hospice-based, and a few are faith-based or independent. If your organization provides formal or informal perinatal hospice/palliative care support and you would like to be added to this list, contact info@perinatalhospice.org.


 
UNITED STATES

ALASKA

Fairbanks Memorial Hospital perinatal bereavement program. Contact: (907) 458-3014. Fairbanks, Alaska

Hospice of Anchorage, providing support to parents before and after birth as well as coordination with medical providers. Contact: Bereavement services coordinator Lisa Fleischer, (907) 561-5322. Anchorage, Alaska



ARKANSAS

Arkansas Fetal Diagnosis and Management, a collaborative program of the University of Arkansas for Medical Sciences and Arkansas Children's Hospital. Contact: Lori Gardner RN, (866) 273-3835. Little Rock, Arkansas

St. Vincent Health System Journey perinatal bereavement program, including perinatal hospice support. See list of services and video. Contact: RTS bereavement coordinator Lynette Spruell LPN. Little Rock, Arkansas



ARIZONA

MISS Perinatal Palliative CARES Program. Contact: (602) 279-MISS (6477) or (888) 455-MISS (6477)

EMBRACE Palliative Care Foundation. Contact: Berdette Carrasco RNC or Dana Southworth LMSW, (623) 330-4963 or email.

Hospice of the Valley perinatal program. Phoenix, Arizona

To Lose a Child (TLC) perinatal palliative care program, Northern Arizona Healthcare (Flagstaff Medical Center & Verde Valley Medical Center). Contact: Perinatal educator Lynn Harris RN BSN or Renee Hamilton, (928) 214-2731. Flagstaff, Arizona

CALIFORNIA
Angel Babies/Bebitos Angelitos of Hinds Hospice, Fresno and Merced, California

Pediatric and perinatal hospice care at The Elizabeth Hospice and the affiliated Center for Compassionate Care, which provides grief counseling and support. Contact: Center for Compassionate Care Director Lizabeth Sumner RN BSN, (760) 737-2050. Escondido, California

UCSF Medical Center Compass Care Pediatric and Perinatal Palliative Care Program. Contact: Tina Ratto RN MSN, (415) 353-7558. San Francisco, California

Perinatal palliative care in partnership with the University of California-Irvine Medical Center and OC Walk to Remember, Costa Mesa, California


Perinatal Hospice Services, Life Choices Pregnancy Clinic of the Ojai Valley. Ojai, California

Perinatal and pediatric hospice at University of California San Diego/ Rady Children's Hospital. Contact: Krishelle Marc-Aurele MD, board-certified in neonatology and hospice & palliative medicine, (619) 543-3759. San Diego, California

St. Joseph Health System Perinatal Comfort Care, Orange, California


Scripps Health Perinatal Hospice Care, with hospital locations in La Jolla, Chula Vista, Encinitas, and San Diego, California

TrinityCare Hospice
TrinityKids Care. Contact director Gay Walker, (310) 530-3800. Los Angeles, California

Embrace the Journey perinatal support, Walk to Remember Inland Empire, (909) 235-WALK. (See their video here.) Riverside/San Bernardino/Ontario, California

COLORADO
Hospice del Valle. Contact: Lois Booth RN, (719) 589-9019. Alamosa, Colorado

String of Pearls, in association with Littleton Adventist Hospital, Littleton, Colorado

CONNECTICUT
Perinatal Hospice Program, Regional Hospice and Home Care of Western Connecticut. Contact: Coordinator Christine Mastropietro RN, (203) 702-7400. Danbury, Connecticut

DELAWARE

IMPACT (Infant, Maternal, Pediatric Advanced Care Team) perinatal palliative care, Christiana Care Health Systems. Contact: Office of Neonatology, (302) 733-2410. Newark, Delaware


FLORIDA

AMEND (Aiding a Mother/Father Experiencing Neonatal & Infant Death), in collaboration with the bereavement program at Florida Hospital Tampa. Contact: AMEND program director Karen Frazier RN, (813) 631-9519. Tampa, Florida

Community PedsCare perinatal program, a program of Community Hospice of Northeast Florida in collaboration with Wolfson Children's Hospital, Nem
ours Children's Clinic and the University of Florida. Contact: Director Terry Eason, (904) 407-6302, Jacksonville, Florida

Perinatal ComfortCare of Tampa, Life Impact Network. Contact:
Kathy DeSanto RN, (813) 931-1804 ext. 211. Tampa, Florida

Suncoast Hospice perinatal loss program. Contact: Julie Douglass, (727) 523-2425. Clearwater, Florida

The Mending Tree at Circle of Love Center, Chapters Health System. Contact: Jacqueline Warner Garman, LCSW, ACHP-SW, (813) 357-5671. Tampa, Florida


GEORGIA
Hospice Atlanta Children's Hospice Program, including care before birth. (404) 869-3000. Atlanta, Georgia

Hospice of Northeast Georgia Medical Center perinatal program, (770) 533-8888. Gainesville, Georgia

H.E.A.R.T.strings Perinatal Palliative Care, Northside Hospital Perinatal Loss Office, Atlanta, Georgia

Sound Journeys Perinatal Hospice. Columbus, Georgia


HAWAII

Perinatal Hospice of Hawai'i. Contact: Maria LaFond RN, (406) 465-3265. Honolulu, Oahu, Hawaii


IDAHO
Butterfly's Embrace, a perinatal palliative care service of St. Luke's Health System labor and delivery unit. Contact: Jennifer Jonely RN, (208) 381-2651. Boise, Idaho

Daniel's Gift supportive counseling services, St. Luke's Health System Fetal Medicine Program. Contact: Coordinator Jacque Brown RN, (208) 410-9174. Twin Falls, Idaho

ILLINOIS
Advocate Lutheran General Hospital Perinatal Palliative Care Program. Contact: Palliative care coordinator Kathie Kobler MS RN, (847) 723-7911. Park Ridge, Illinois

BJC Hospice perinatal hospice care, Alton, Illinois (see also listings in Missouri)

Downers Grove OB/GYN perinatal hospice services, Downers Grove, Illinois

Perinatal and neonatal palliative care at Prentice Women's Hospital/Northwestern Memorial Hospital, in collaboration with the Bridges Pediatric Palliative Care Program at Lurie Children's Hospital. Contact: Neonatologist Natalia Henner MD or neonatologist Jessica Fry MD. Chicago, Illinois

The Haven Network: Northern Illinois' Perinatal Hospice and Bereavement Center. Rockford, Illinois

Rush University Medical Center Fetal & Neonatal Medicine Program. Contact: Maria Reyes RNC MSN, (312) 942-7874. Chicago, Illinois

Karla Polaschek MD,
Medical Arts Ltd., (309) 779-4285. Moline, Illinois (See also Women's Choice Center, Bettendorf, Iowa)

St. Alexius Medical Center Perinatal Palliative Care. Contact: Kristi Moran MSW, (847) 303-7946. Hoffman Estates, Illinois

INDIANA
Code Noah perinatal hospice, Community Health Network, Indianapolis

Deaconess Health System Hand in Hand Perinatal Palliative Care website and brochure, The Women's Hospital, (812) 842-4200. Newburgh, Indiana

Pathways perinatal loss/bereavement programs, Riley Hospital for Children Perinatal-Fetal Center, Indiana University (IU) Health, (317) 962-8153, Indianapolis


Perinatal Care, St. Vincent Indianapolis Hospital, Indianapolis

IOWA
Blank Children's Hospital SHINE Program: Perinatal and Pediatric Palliative Care, UnityPoint Health. Contact: (515) 241-5750. Des Moines, Iowa

Mercy Medical Center Perinatal Hospice. Contact: Bereavement and perinatal hospice coordinator Ann Valdez BSN RNC, Mercy Women & Infants' Center, (515) 358-3030. Des Moines, Iowa

University of Iowa Children's Hospital Perinatal Palliative Care. Contact: Sheila B. Frascht RN, CHPPN, CPLC, Grief Services/Pediatric Palliative Care, (319) 356-7411. Iowa City, Iowa

Women's Choice Center. Contact: Medical director Karla Polaschek MD. Bettendorf, Iowa (See also listing in Moline, Illinois)


KANSAS
Choices Medical Clinic, (316) 687-2792. Wichita, Kansas

See also
Kansas City Hospice and Palliative Care Carousel Perinatal Services, Kansas City, Missouri

KENTUCKY
Bridges of Love, Baptist Health Lexington Perinatal Palliative Care Program. Contact: Perinatal bereavement coordinator Deborah Mueller RN BSN, (859) 260-6904. Lexington, Kentucky

LOUISIANA
Woman's Hospital Perinatal Palliative Care Program. Baton Rouge, Louisiana

Perinatal Palliative Care Hospice Program, Hospice of Baton Rouge, (225) 767-4673. Baton Rouge, Louisiana

MARYLAND
Anne Arundel Medical Center Perinatal Loss and Palliative Care Program. Contact: Program coordinator Ann O'Sullivan RN, (443) 481-6989. Annapolis, Maryland

Chesapeake Kids Perinatal and Infant Loss Support Program, Hospice of the Chesapeake. Contact: Heather Silver LCSW-C, CPLC, The Life Center, (410) 987-2129. Annapolis and Landover, Maryland

Gilchrist Kids Perinatal Hospice and Palliative Care, Gilchrist Hospice Care, an affiliate of Greater Baltimore Medical Center. Contact: Program manager at (443) 849-8200. Hunt Valley, Maryland

Isaiah's Promise, parent support sponsored by the Archdiocese of Washington. Contact: Cubby LaHood or Nancy Mayer-Whittington, (301) 681-5784. Silver Spring, Maryland

Johns Hopkins Hospital perinatal palliative care support. Contact: Perinatal bereavement coordinator Naomi Cross RN. Baltimore, Maryland

Never Alone Perinatal Palliative Care Program, Holy Cross Hospital
. Contact: Perinatal services coordinator Bethany Fox, (301) 754-7672. Silver Spring, Maryland

Rising Hope Perinatal Hospice, Howard County General Hospital (a member of Johns Hopkins Medicine). Contact: Mary Peroutka RN, (410) 884-4709. Columbia, Maryland

MASSACHUSETTS
Baystate VNA and Hospice perinatal support, provided through the Massachusetts Pediatric Palliative Care Network. Springfield, Massachusetts

Brigham and Women's Hospital Perinatal Palliative Care Program. Contact: Neonatologist Simon Manning MD, (617) 732-8405. Boston, Massachusetts

Care Dimensions (formerly Hospice of the North Shore & Greater Boston) perinatal palliative care. Contact: Maureen Forbes MS CCLS, (978) 750-9335. Danvers, Massachusetts

Cranberry Hospice Fragile Footprints Pediatric Palliative Care. Contact: Administrator Deborah Dolaway, LICSW, (508) 746-0215. Plymouth, Massachusetts

Estrella's Program perinatal hospice, PediPathways Inc. pediatric hospice and palliative care agency serving the greater Boston area. Contact: Social services manager Elissa Bosley LCSW, (617) 774-1351. North Quincy, Massachusetts

Hospice Care in The Berkshires pediatric palliative care, including prenatal support. Contact: Program director Christine Frederick LCSW, (413) 443-2994. Pittsfield, Massachusetts

Notre Dame Health Care Perinatal Palliative Care. Worcester, Massachusetts

Tufts Medical Center, Center for Perinatal Palliative Care. Contact: Director Linda Kleeman MD, (617) 636-8176. Boston, Massachusetts

Visiting Nurse Association & Hospice of Northern Berkshire. Contact: Kathie Tryon RN
, (413) 664-4536.
North Adams, Massachusetts

Home Health VNA/Merrimack Valley Hospice, (800) 475-8335 or (978) 552-4122. Lawrence, Massachusetts

MICHIGAN
Angela Hospice Prenatal Program, Livonia, Michigan

Bronson Methodist Hospital Perinatal Palliative Care, (269) 341-7533. Kalamazoo, Michigan

Kaleidoscope Kids, Hospices of Henry Ford Health System, Detroit, Michigan

Hospice of Michigan Perinatal Program. Contact: Mary Spicketts MSN RN CHPN CHPPN, director of the pediatric hospice care, pediatric early care, and perinatal hospice programs, (616) 356-5241 or 24-hour support line (888) 247-5701.
Grand Rapids, Michigan

Perinatal Hospice and Tender Care of Washtenaw County. Contact: director Janet Holtz, (734)395-0400. Ann Arbor, Michigan

MINNESOTA
Abbott Northwestern Hospital, Birth Center Case Management Specialists, (612) 863-7585. Minneapolis, Minnesota

Birth Center, United Hospital. Birth planning in special situations (pdf). Contact: Annette Klein RN, (651) 241-6206. St. Paul, Minnesota

Deeya (a Sanskrit word meaning "a small light") perinatal hospice, a joint program of Children's Hospitals and Clinics in Minneapolis and St. Paul, Abbott Northwestern Hospital in Minneapolis, and United Hospital in St. Paul, Minnesota

Fairview Health Services perinatal palliative care, with services available at several hospitals and clinics in the Minneapolis-St. Paul area

Hennepin County Medical Center Birth Center. Contact: (612) 873-5006 or high-risk clinical care coordinator Tamara Harvanko RN, (612) 873-6552. Minneapolis, Minnesota

Lakewood Health System perinatal hospice,
(218) 894-8080 or (800) 525-1033. Staples, Minnesota

Mayo Clinic Children's Center ComPASS: Comprehensive Pediatric and Adolescent Support Services, including perinatal palliative care. Rochester, Minnesota

Minnesota Birth Center, a home-like, freestanding birth center staffed by certified nurse-midwives and registered nurses. Medical director: Steven E. Calvin MD, perinatologist. (612) 545-5311. Minneapolis, Minnesota

University of Minnesota Medical Center, Fairview and University of Minnesota Amplatz Children's Hospital, Fairview, Perinatal Palliative Care Program. Contact: Genetics counselor Meg Eilers, (612) 273-5635. Minneapolis, Minnesota

MISSOURI
Alexandra's House, Kansas City, Missouri

BJC Hospice Perinatal Program in St. Louis, Sullivan, and Farmington, Missouri; also in Illinois. See their video on YouTube

1st Breath perinatal hospice support. Kansas City, Missouri

Footprints, Cardinal Glennon Children's Medical Center, St. Louis, Missouri

Kansas City Hospice and Palliative Care Carousel Program prenatal services, Kansas City, Missouri

The Fetal Care Center perinatal hospice program, Children's Hospital, Barnes Jewish Hospital, Washington University physicians. St. Louis, Missouri

MONTANA
Perinatal Palliative Care, Billings Clinic. Contact: Diane Arkava LCSW, (406) 247-6344. Billings, Montana

NEBRASKA
Journey to Love, a peer ministry offering practical guidance and support, sponsored by the Archdiocese of Omaha. Contact: Elizabeth Murphy, (402) 551-9003, ext. 1306. Omaha, Nebraska

Perinatal Comfort Care Program, Methodist Women's Hospital. Contact:
perinatal comfort care liaison Nina Mohr BSN RN (402) 354-3488, or clinical nurse educator Mary Killpack MSN RN, (402) 354-5634. Omaha, Nebraska

Perinatal Hospice, Alegent Health System, Bergan Mercy Medical Center. Contact: Coordinator Nancy Kadavy MSN APRN, (402) 398-6014. Omaha, Nebraska

Saint Elizabeth Regional Medical Center EMBRACE Perinatal Palliative Care and Hospice Program. Contact: EMBRACE coordinator, (402) 219-7065. Lincoln, Nebraska

NEVADA

Pediatric Obstetric Neonatal Dedicated Support Program (PONDS), part of the palliative care program at Saint Mary's Regional Medical Center. Reno, Nevada


NEW HAMPSHIRE

Aliyah Perinatal Hospice Support, Options for Women pregnancy resource center. Contact: Client services director Jennifer Tate RN, (603) 749-4441. Dover, New Hampshire


NEW JERSEY
Circle of Life Children's Center. Contact: Director of Program Services Sheila Walsh APRN BC, (973) 972-1743. Newark, New Jersey

Valley Health System Butterflies Program. Contact: Coordinator Mary Ann West RN MSN CHPN, (201) 291-6335. Paramus, New Jersey


NEW MEXICO

University of New Mexico Children's Hospital Special Delivery Program. Contact: Medical director Rebecca Moran MD, (505) 272-8955. Albuquerque, New Mexico



NEW YORK
A TIME, a Jewish support organization for those experiencing pregnancy loss and infertility. Contact: Malkie Klaristenfeld, director of services for pregnancy loss, (718) 686-8912. New York, New York

CareFirst Perinatal Palliative Care (formerly Southern Tier Hospice and Palliative Care), Corning, New York

CHOICES Pediatric Palliative Care Program, SUNY Upstate Medical University. Contact: Irene Cherrick MD, (315) 243-7826. Syracuse, New York

Circle of Hope Perinatal Bereavement Program, Hospice Care in Westchester and Putnam. Contact: Maribel Nazario, (914) 666-4228, ext. 336. Tarrytown, New York

CompassionNet perinatal palliative care program, Lifetime Care Home Health and Hospice. Contact: Alyssa Gupton LCSW, (800) 308-3914 or (585) 214-1333. Support available in Rochester, Buffalo, Syracuse, Utica, Binghamton, Elmira, and surrounding areas.

Diana's Hope, National Gianna Center for Women's Health and Fertility at St. Peter's Healthcare System, Regional Medical Campus of Drexel University College of Medicine. Contact: Anne Nolte MD, (212) 481-1219. New York, New York

Footprints on the Heart, Sisters of Charity Hospital. Contact: Nurse coordinator Fran Kane, (716) 862-1678. Buffalo, New York

Good Samaritan Hospital Medical Center perinatal hospice program, "Gabriel's Courage." West Islip, New York

Good Samaritan Hospital Perinatal Bereavement Program. Contact: Mary Radatovich LMSW LCSW, (845) 368-5297. Suffern, New York

Hospice Buffalo Essential Care Perinatal Program. Contact: Kelley Clem RN, (716) 686-8173 or (716) 686-8006. Buffalo, New York
Hospice Care Network Perinatal Support. Contact: Mary Gravina CSW, director of bereavement, (631) 666-6873 x203. Long Island, New York

Maggie Rose Perinatal Bereavement Program, Bereavement Center of Westchester. Contact: Patty Donovan-Duff, (914) 961-2818, ext. 305. Tuckahoe, New York

Morgan Stanley Children's Hospital of New York Presbyterian/Columbia University, including prenatal support. See websites for medical providers and parents. Contact: Neonatologist Elvira Parravicini MD,
New York City, New York

NORTH CAROLINA
Angels Among Us, parent support sponsored by the Diocese of Raleigh. Contact: Anne Walther, (919) 349-3275. Raleigh, North Carolina

Asheville Doula Services. Support from a certified birth and postpartum doula with specialized training in perinatal loss. Asheville, North Carolina

Be Not Afraid, a private non-profit organization providing peer-based parent support including prenatal contact, birth and bereavement support, and followup for one year, as well as training resources for new programs.
Charlotte, North Carolina

Kids Path Perinatal Hospice, Hospice and Palliative Care of Greensboro, North Carolina

Perinatal ComfortCare of North Carolina, Charlotte, providing support services guided by OB nurses experienced in perinatal bereavement. Contact: CEO and founder Tammy Tate, (864) 419-4519.
Perinatal hospice at Mountain Valley Hospice & Palliative Care, Mount Airy, North Carolina
University of North Carolina Center for Maternal and Fetal Health perinatal hospice team, Chapel Hill, North Carolina

NORTH DAKOTA
Caring Hearts Perinatal Program, Essentia Health. Fargo, North Dakota

OHIO
Cincinnati Children's Hospital Medical Center StarShine Perinatal Hospice, Cincinnati, Ohio

Cleveland Clinic Fetal Care Center. Contact:
Donna Patno CNM DNP, (866) 864-0430. Cleveland, Ohio

Hospice of the Western Reserve Perinatal Care Program, Cleveland, Ohio

Journey of Hope Perinatal Hospice, Miami Valley Women's Center. Contact: Nancy Jensen RN, (937) 298-9998, Dayton, Ohio

Maternal-Child/Pediatric Palliative Care (MACPAC) at Mercy Children's Hospital and Mercy St. Vincent. Contact: Angie Westenkirchner RN, maternal-fetal medicine high-risk patient navigator, (419) 251-8065. Toledo, Ohio

Miami Valley Hospital/Dayton Children's Hospital Fetal to Newborn Care Center, including perinatal hospice support. Dayton, Ohio

Nationwide Children's Hospital Homecare perinatal hospice care. Columbus, Ohio

Perinatal palliative care, The Toledo Hospital/Toledo Children's Hospital, ProMedica Health System. Contact: social worker Kim Folk-Axe, (419) 291-5421, or Chaplain Julie Beitelschees, (419) 291-3656. Toledo, Ohio

Rainbow Babies & Children's Hospital Pediatric Palliative Care Center. Contact: Ann Marie Dragon RN BSN MBA, clinical coordinator, (216) 286-4215. Cleveland, Ohio

Sufficient Grace Ministries Perinatal Hospice and Bereavement Services, providing in-person and online support. Contact: Kelly Gerken, (419) 722-6978. Deshler, Ohio

OKLAHOMA

Be A Pal (Bereavement and Palliative Care) Committee at OU Medical Center, University of Oklahoma. Includes perinatal and neonatal support. Contact: Debbie Rice RN, (405) 271-8001, ext. 42085. Oklahoma City, Oklahoma

The SILAS Program, perinatal palliative care at Helmerich Women's Health Center, Hillcrest Healthcare System. Oklahoma City, Oklahoma



PENNSYLVANIA
Children's Hospital of Philadelphia Center for Fetal Diagnosis and Treatment Perinatal Palliative Care Initiative. Contact: Perinatal palliative care and bereavement coordinator Kelly Gross CCLS CTRS. Philadelphia, Pennsylvania

Delaware County Memorial Hospital Perinatal Palliative Care Program. Contact: Perinatal Bereavement Services at (610) 394-4798. Drexel Hill, Pennsylvania

Lancaster General
Health Perinatal Palliative Care. Contact: Perinatal palliative care coordinator Sharon Kauffman MSN RN CPLC, (717) 544-3418. Lancaster, Pennsylvania

Lily's Gift, a collaboration of the Office for Persons with Disabilities, the Office of Life and Family, and Catholic Social Services of the Archdiocese of Philadelphia. Contact: Sr. Kathleen Schipani, (215) 587-3530 or Kathleen Bevenour, (215) 945-2550. Philadelphia, Pennsylvania

Tender Hope Perinatal Hospice, a division of SUN Home Health and Hospice, (888) 478-6227. Northumberland, Pennsylvania

WellSpan York Hospital Loving with Grace perinatal palliative care program. Contact: Program coordinators Amanda Delridge RN and Jill Royer BSN, (717) 851-4730. York, Pennsylvania

You Are Not Alone, parent support sponsored by the Diocese of Allentown. Contact: Sr. Janice Marie Johnson RSM, (610) 289-8900 x245 or Teri Dakuginow, (610) 435-1541 x334. Allentown, Pennsylvania

RHODE ISLAND

My Child, My Gift, parent support sponsored by the Diocese of Providence. Contact:  Carol Owens, (401) 278-4508. Providence, Rhode Island

Women & Infants' Hospital of Rhode Island Perinatal Palliative Care Program. Contact: Neonatologist Beatrice Lechner MD, (401) 274-1100. Providence, Rhode Island


SOUTH CAROLINA

COMPASS (Comprehensive Perinatal, Pediatric, and Adolescent Support Service) at Palmetto Health Children's Hospital. Contact: Nurse coordinator Debbie Kamowski RN BSN CHPPN, (803) 434-2249. Columbia, South Carolina 

Perinatal ComfortCare of South Carolina, Greenville
, providing support services guided by OB nurses experienced in perinatal bereavement. Contact: CEO and founder Tammy Tate, (864) 419-4519. Greenville, South Carolina

SOUTH DAKOTA

Avera McKennan Palliative Care Service, Avera McKennan Hospital. Contact: Medical director Joann Bennett DO FACOI, Nancy Terveen NP (605) 322-8993; Michele Snyders MSW, Anna Perry MSW, (605) 322-8273. Sioux Falls, South Dakota

Sanford Children's Hospital Pediatric Palliative Care. Contact: Lawrence Fenton MD or Pam Koepsell RN, (605) 312-1062. Sioux Falls, South Dakota



TENNESSEE
Alive Hospice Monarchs perinatal program, Nashville, Tennessee
Hospice of Chattanooga Perinatal Care Program, Chattanooga, Tennessee

Monroe Carell Jr. Children's Hospital at Vanderbilt Prenatal Care Services, through the Fetal Center. Contact: Genetic counselor Martha Dudek MS CGS or palliative care coordinator Tisha Longo LMSW, (615) 343-4673. Nashville, Tennessee

St. Thomas Midtown Hospital perinatal hospice program. Nashville, Tennessee

TEXAS
Cook Children's Medical Center. Contact: NICU director Barbara Greer, palliative care medical director Todd Pearson MD, or neonatologist and palliative care specialist Terri Weinman MD, (682) 885-4285. Fort Worth, Texas

Houston Hospice Butterfly Program perinatal hospice, Houston, Texas

Journey of Hope/Viaje de Esperanza, University of Texas Health Science Center at San Antonio. Contact: Peggy Humm MSN RN, (210) 843-4719. San Antonio, Texas

Kinder Hope Perinatal Hospice Care, Hope Hospice, (830) 625-7525 or (800) 499-7501. New Braunfels, Texas

Love's Legacy Perinatal Hospice Support Care, Burleson Pregnancy Aid Center. Contact: Nurse manager Penny Leone RN, (817) 295-4101 or (817) 932-5488. Burleson, Texas

Medical City Women's and Children's Hospital Advanced Maternal and Newborn Institute palliative care. Contact: Michelle Jones RN, (972) 566-8585. Dallas, Texas

T
exas Fetal Center, University of Texas Health Science Center, Children's Memorial Hermann Hospital
. Contact: Karen Moise RN, Fetal Center clinical coordinator, (832) 325-7288; Gina Leigh Jones RN, coordinator of bereavement and supportive care services, (713) 704-5068; or Kim Cole RNC NNP-BC or Kristie Cullum RN BSN CHPN, (713) 704-0495. Houston, Texas

Texas Health Harris Methodist Fort Worth Hospital weeCare perinatal and neonatal palliative care program. Contact: Medical director Terri Weinman MD, (817) 250-7815 or email. Fort Worth, Texas

Pediatric and Perinatal/Neonatal Palliative Program of the Permian Basin,
West Texas Maternal Fetal Medicine Center. Contact: Jamie Chase MS CGC. Odessa, Texas

University of Texas Medical Branch Perinatal Hospice and Palliative Care. Galveston, Texas

VITAS Innovative Hospice Care. Contact: (817) 870-7070. Fort Worth, Texas
 

UTAH
Angel Watch, Intermountain Health Care. Contact: Carolyn Kasteler RN, (801) 698-4486.  Salt Lake City, Utah

Rainbow Kids Palliative Care Program, Primary Children's Medical Center/University of Utah. Contact: Nurse coordinator Beth Nordfors RN, (801) 662-3770. Salt Lake City, Utah 

VIRGINIA
Edmarc Hospice for Children perinatal hospice. Contact: (757) 967-9251. Portsmouth, Virginia

Embracing Grace peer support, sponsored by the Catholic Diocese of Richmond, Virginia

Family Birth Place at Mary Washington Hospital. Contact: Perinatal bereavement coordinator Tammy Ruiz RN, (540) 741-3268. See also her video about perinatal hospice. Fredericksburg, Virginia

Noah's Children perinatal care, St. Mary's Hospital. Richmond, Virginia

Perinatal Concerns Program, Inova Fairfax Hospital. Contact: Kelly Gallo RN, (703) 776-6371. Falls Church, Virginia

Perinatal Palliative Care Program, St. Francis Medical Center. Contact: Perinatal bereavement coordinator Michelle Henderson RNC-OB, CCL, (804) 594-3250, (804) 594-3291. Midlothian, Virginia

Tepeyac Family Center Kristin Anderson Perinatal Hospice Program, (703) 273-9440, Fairfax, Virginia

WASHINGTON
Lavender Tree , Care Net of Pierce County, (253) 770-8697 or e-mail. Puyallup, Washington

Forget-Me-Not Perinatal Palliative Care, Sacred Heart Women's Health Center. Spokane, Washington

Stepping Stones Perinatal Program, Providence Health System's Hospice of Seattle, Washington
 

WEST VIRGINIA
Byron C. Calhoun MD FACOG FACS MBA, professor and vice chair, Maternal-Fetal Medicine Division, West Virginia University-Charleston, (304) 388-1599. Charleston, West Virginia

WISCONSIN

Children's Hospital of Wisconsin Fetal Concerns Program palliative care, Milwaukee, Wisconsin
Gundersen Lutheran Palliative Care. Contact: Bereavement specialist Jill Wilke BSN RN (608) 775-3796 or (800) 362-9567 ext. 53796. La Crosse, Wisconsin

Perinatal CARE Program, Affinity Health System. Contact: Coordinator Alyson Krokosky MS CGC, (920)-831-1284. Appleton, Wisconsin

Meriter Hospital Perinatal Palliative Care. Madison, Wisconsin

St. Vincent Hospital pregnancy and infant loss support. Contact: Perinatal palliative care & bereavement coordinators Lana Reinke RN CPLC (NICU) or Theresa Shuck MS MA CGC CPLC (genetic counselor). Green Bay, Wisconsin


 
INTERNATIONAL

ARGENTINA

Pediatric palliative care at Hospital Nacional Prof. Alejandro Posadas, including prenatal support. Contact: Pediatric palliative care director Rut J. Kiman MD. Buenos Aires, Argentina


AUSTRALIA

Perinatal Palliative Care, sponsored by Catholic Health Australia, Mater Health, Mercy Health, and Calvary Health Care, with 13 hospital and clinic locations in Adelaide, Brisbane, Canberra, Hobart, Launceston, Mackay, Melbourne, North Queensland, and Wagga Wagga.

Women's and Children's Hospital. Contact: Maternal-Fetal Medicine coordinator or pediatric palliative care team at 08 8161 7000. North Adelaide, Australia


CANADA
Alberta Children's Hospital Children's Hospice and Palliative Care Service,
also accepting referrals for perinatal hospice. Contact: Clinical nurse specialist Kathryn da Silva, (403) 955-5460. Calgary, Alberta

Pediatric Palliative Care Program, Child Health Program, Capital Health. Contact: (780) 407-7210 (physician) or (780) 407-7652 (nurse coordinator), or e-mail Dawn Davies MD or Tara Wren. Edmonton, Alberta

Pediatric Palliative Care Service, IWK Health Centre. Contact: (902) 470-7262 or email Marie-Claude Grégoire MD or clinical nurse specialist Grace MacConnell. Halifax, Nova Scotia

Pediatric Palliative and Bereavement Care Service, University of Toronto Hospital for Sick Children. Contact: Palliative care and bereavement coordinator Lori Ives-Baine RN, (416) 813-6782. Toronto, Ontario

Canuck Place Children’s Hospice offers comprehensive pediatric palliative care and hospice support, including perinatal. E-mail or
phone: (604) 731-4847. Vancouver, British Columbia 

London Health Sciences Centre Perinatal Hospice. Contact: Genetic counsellor Stephanie Ho, Medical Genetics Program, (519) 685-8500, ext. 52428. London, Ontario


Roger's House pediatric hospice, offering perinatal hospice in collaboration with the Children’s Hospital of Eastern Ontario Palliative Care Outreach Program. Ottawa, Ontario

CHILE

Acompañar-es Perinatal Palliative Care, Catholic University Hospital. Contact: Dr. Jorge Neira, Department of Gynecology and Obstetrics UC, (56) (2) 23548077 or email. Santiago, Chile
 

 
ENGLAND

Forget Me Not Children's Hospice, Neonatal Inreach Project, including antenatal support for families whose baby has been diagnosed with a life-limiting anomaly; Russell House, Huddersfield, West Yorkshire, U.K. 
Phone: 01484 411042.

The Maypole Project offers emotional psychosocial support, including prenatal support, integrated with children's hospices and children's hospitals in southeast London and Kent to ensure a holistic package of care.

Together for Short Lives, a U.K. charity for children with life-threatening and life-limiting conditions, also provides prenatal support and information.

FRANCE

Department of Neonatology, University Hospital North; Assistance Publique-Hôpitaux de Marseille. Contact: Dr. Barthélémy Tosello. Marseille, France

Soins Palliatifs et Accompagnement en Maternité, SPAMA (Palliative Care and Support in Pregnancy). See also the book Un enfant pour l'éternité by Isabelle de Mézerac, also available in Spanish and Portuguese.



GERMANY

Parents Helping Parents: Continuing a pregnancy after a prenatal diagnosis. Bruck, Germany



IRELAND

Antenatal support at Coombe Women & Infants University Hospital, Dublin. Contact: Director of fetal medicine Carmen Regan MD or Brid Shine, clinical midwife specialist in bereavement and mental health, 00 353 (1) 408 5200.

Perinatal bereavement support at Cork University Maternity Hospital, Wilton, Cork, Ireland. Contact: Hospital Chaplain Daniel Nuzum, 00 353 (21) 492 0500.

For parent-to-parent support: A Little Lifetime Foundation, a Dublin organization providing support to bereaved parents including those with a prenatal diagnosis, and One Day More and Every Life Counts, for those continuing a pregnancy after a prenatal diagnosis.



ITALY

La Quercia Millenaria perinatal hospice at Agostino Gemelli teaching hospital, Catholic University of the Sacred Heart. Contact: Sabrina Pietrangeli Paluzzi, Tel. 0765-451160, cell 3208010942. Rome, Italy

La Quercia Millenaria perinatal hospice at St. Chiara Hospital, University of Pisa. Contact: Bianca De Pascalis, cell 3470445933. Pisa, Italy

Percorso Giacomo (James' Path) perinatal hospice, Sant'Orsola Hospital, University of Bologna. Contact: Neonatologist Chiara Locatelli MD or by email. Bologna, Italy

Programma Perinatal Hospice, providing prenatal and neonatal support for families whose baby has life-threatening and life-limiting conditions. Maternal Fetal Medicine Department, Ospedale Evangelico Villa Betania. Contact: Annalisa Agangi, Department of Obstetrics; or Franca Sarracino, Department of Neonatology, Tel 3389832624. Naples, Italy

See also the book Aspettando Gabriel by Amy Kuebelbeck (Edizioni San Paolo), available from Amazon.it.


MEXICO

Hospital Civil de Guadalajara Juan I. Menchaca. Contact: Yuriko Nakashima MD, Tel +52(33) 36183962, ext. 1307.
Guadalajara, Jalisco, Mexico


NEW ZEALAND
Starship Children's Hospital pediatric palliative care team. Auckland, New Zealand

The Therese Programme, providing perinatal hospice information and support after an adverse prenatal diagnosis; a project of Family Life International NZ. Auckland, Poirirua, and Dunedin, New Zealand


NICARAGUA
Centro de Coordinación Para El Acompañimiento de Madres con un Hijo/a Terminal, Associación de Médicos Catolicos, Humanae Vitae. Contact: Dr. Walter Zamora Palma, Dr. Rafael Diaz Salazar, Dr. Juan Herrera Salazar, tel. 2270 3359, 2278 1169. Managua, Nicaragua

NORWAY

Hospice i mors liv—A virtual "hospice in the womb" that offers guidance and peer support, throughout the pregnancy and after. See also the e-book Evy Kristine: Retten til et annerledesbarn. Contact: Siri Fuglem Berg MD PhD, tel. +47 90 70 10 11. Gjovik, Norway

Hospice i mors liv (hospice in the womb), "Yes for palliative units and care for children in Norway" (an advocacy organization). Kristiansand, Norway


PARAGUAY

Fundación Juan Pablito, "la vida compatible con el amor." Asunción, Paraguay


POLAND

Hospicyjna Opieka Perinatalna (Perinatal Hospice Care), Fr. Dutkiewicz Hospice, Hospice Foundation. Gdansk, Poland

Śląskie Hospicjum Perinatalne, Katowice, Poland

Warsaw Hospice for Children Hospicjum Perinatalne and Perinatal Ultrasound Clinic, Warsaw, Poland

Wroclaw Hospice for Children Hospicjum Perinatalne, Wroclaw, Poland

SCOTLAND

Perinatal palliative care pilot project, National Health Service Lothian. Contact: Neonatologist Edile Murdoch MD. Edinburgh, Scotland



SOUTH AFRICA

Sunflower Children's Hospice neonatal and palliative care service. Bloemfontein, South Africa


SPAIN

HSJD Hospice Perinatal Program, Hospital Sant Joan de Déu. Contact: Dr. Ana Martín Ancel, Department of Neonatology. Barcelona, Spain




If your organization provides formal or informal perinatal hospice support
and you would like to be added to this list, please contact us.





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