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"You matter because you are you,
and you matter until the last moment of your life.”
-Dame Cicely Saunders, founder of the modern hospice movement
If you are here because of a prenatal diagnosis that indicates your baby likely will die before or after birth, we are so sorry. Perhaps you are considering continuing your pregnancy and embracing whatever time you may be able to have with your baby, even if that time is only before birth, while your baby is cradled safely inside of you. Please know that support is available (see the links on this site for perinatal hospices and other resources) and that you are not alone. Parents who have traveled this path before you have found that it can be a beautiful, profoundly meaningful, and healing journey.
For those who will be traveling this path, we are working on our upcoming book, A Gift of Time: Continuing your pregnancy with a terminal prenatal diagnosis, to be published by Johns Hopkins University Press.
If you are a health care provider or perinatal hospice advocate who is interested in networking and sharing information about providing perinatal hospice support, you are invited to join the conversation on our e-mail discussion list.
Amy Kuebelbeck, M.A.
Author of Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life,
a memoir about continuing a pregnancy with a terminal prenatal diagnosis
 Deborah L. Davis, Ph.D.
Developmental psychologist and author of books including
Empty Cradle, Broken Heart: Surviving the Death of Your Baby
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